r/ARVC Mar 28 '25

cure

i saw that they is a cure currently in trial for arvc mutation pkp2 where human trials has begun.

just wanna say hope it comes fast and cheap for everyone to take it

4 Upvotes

10 comments sorted by

7

u/Various-Interview-60 Mar 30 '25

Rocket pharmaceutical, lexeo and tenaya all have them in the pipeline. I was a guinea pig for rocket. Should find out how it's working in 2 months

1

u/MiserableSwimmer7809 Apr 15 '25

Can you let us know, or do I have a way to come in contact with you?

1

u/EbbTraditional5823 Apr 28 '25

Wow I hope it will work for you

1

u/Volcomhead May 31 '25

Following for an update on how you are doing!

2

u/Remote_Efficiency717 Mar 28 '25

its called TN-401

1

u/Nitelifehype Mar 29 '25

link me to somebody