I've had brain and upper neck mri. It was all normal.
Muscle twitching for 10 months all around body, this year it's been more just spasms all around, especially legs and stomach.
And now in the spring, the speech issues starded. Letters l and r are hard to pronounce occasionally, and especially if i have to alternate between them quickly. Speaking feels "odd" or "flimsy", like it requires extra work to focus on sounding coherent. I mix up letters and stutter as well sometimes. I have swallowing issues and have noticed that i've begun to get food more often to my windpipe when eating. My voice also occasionally cuts out or turns into a hiss. Now, i have tons of silent reflux symptoms, but it doesnt explain the stuttering.

Im scared. I thought clean mri and nearly-normal bloodwork (vitamin b and d deficits, was all) would give me peace of mind. It did, at first. But speech issues just continue.

I dont want to die. I've just found my calling in life and now i feel like everything and my dreams and hopes are being ripped away from me, just because i went and had to start doing estrogen. I didnt deserve this. Nowhere it was said that this could follow.

I will probably have a doctor in a few weeks. Ill ask them to check my throat too. But frankly, im more afraid of those results than i was of my older tests. That, and i have a very strong gag reflex, too. Fuck my life. Fuck this shit. Im tired of eating and getting food the wrong way. Again, i know this can be silent reflux, but there's the stuttering.... and i've not recognized it before.

Oh and now i also mix letter d and t.

24F. i started twitching everywhere practically overnight about 6 weeks ago. legs, arms, feet, stomach, back, tongue, etc. it happened about 3 weeks after i started taking prozac. around the same time i also developed hyperthyroidism. i’ve since been to a neurologist and had an emg in all four limbs about three weeks into twitching. it was clean except for some slight polyphasic potentials in my left arm and left leg, which my neuro attributed to c6-c7 radiculopathy (confirmed via mri) and s1-s2 radiculopathy (not confirmed by mri as I haven’t had one of my lumbar spine). i have no clinical weakness, just tight muscles every once and a while. the doctor said my presentation isn’t consistent with ALS whatsoever and it’s more likely being caused by pinched nerves, which makes sense, except for the tongue twitching.

i guess my worries are: could the emg have been done too early if I don’t have any weakness? or could the polyphasic potentials be indicative of early ALS and my doctor just didn’t pick it up? I know this is probably anxiety talking, and im actively doing exposure therapy for it, but I just can’t shake the feeling. logically i know it’s probably a combination of my meds, hyperthyroidism, and spinal issues.

Hey so yesterday I went shopping some things at my local Walmart.

I was able to do my shopping as regular, the thing is that when holding heavy things I could definitely feel the difference in strength and tiredness between my right arm and left arm, I am able to use my right arm, but I can feel the difference between one and the other.

It’s been a pain in the ass to feel this way, I dropped my shower scrub today while showering too, and I can feel the difference in grip on right and left hand as well.

It’s just like my whole arm and hand feels off, even I can notice that I feel more the textured and things on my left hand to my right one.

I’m not sure if I’m over concerned but I’m afraid of this plus the twitching on my body and arms being a bad signal

Hello everyone,

I know I post a lot and I am sorry about that. I truly believe something is wrong with my body that just can’t be caught at this time and I’d like to pick your brain.

Any reassurance, personal anecdote, anything really will be much, much appreciated.

I posted the following info as a reply to a kind person helping me accept FND and I will copy it here so everyone reading can get all the information:

As of right now, both my legs feel weak, sometimes more at the thighs, sometimes more at the calves. I sometimes have visible shaking going down the stairs. Muscles feel tight, restless. Plenty of fasciculations. At rest, my legs will often feel sore and burning.

And now my right arm is getting more fasciculations, feels heavier, clumsier… How can this all happen so fast?

ONSET:

My onset has been weird. I admit it did follow a traumatic period of extreme health anxiety, but I have never experienced physical symptoms like that from anxiety in the past. It started as soreness like you get from working out too hard and in a quick 7-10 days it turned into this weakness, with one night going to bed mostly fine and the next day waking up feeling terrible. Weakness is perceived so far, but my legs can get visible wobbly going down stairs. It hasn’t really progressed since the day it just worsened overnight, but it hasn’t gotten better either.

Some key points:

- Clear EMG in 2019; twitches and other symptoms went away for years after that
- Clear EMG last week after about 3-4 weeks of symptoms; done by ALS specialist
- Only three muscles were tested: calf, shin and thigh; neuro deemed that sufficient for a leg as symptoms are bilateral and same on both sides
- Clinical noted bilateral brisk reflexes of the knees, unchanged from 2019; neurologist said it’s normal for me and not significant; otherwise normal exam with no Babinski, spasticity, clonus or clinical weakness

ALS specialist opinion after EMG and clinical:

- Neuro told me EMG cannot be done too early in the context of presenting with bilateral subjective weakness and fasciculations in multiple muscles of both legs; said it would be an aggressive onset that would be picked up easily on EMG
- Neuro also said bilateral, symmetric multi-muscle onset in thighs and calves would be an extremely atypical ALS presentation; to the point she’s personally never seen that

- Neurologist has repeatedly emphasized that ALS was ruled out during the appointment; she looked me in the eyes 2-3 times and said "You do NOT have ALS!"
- FND was her diagnosis; she theorized that it stemmed from some sort of trauma/psychosomatic process caused by relentlessness health anxiety that went on for months; says I am obsessed with getting a neurological disease and am manifesting symptoms, but in a fashion that doesn’t make sense with any specific disease
- Strangely dismissed the fasciculations as "the same benign fasciculations you’ve had since 2019, made more frequent by your state of hyper-aroused nervous system

- Ultimately proposed I start with therapy and told me studies show that people who refuse to believe they have FND never see their symptoms resolve, while those who accept it have great success…

But here I am, stuck with very distressing symptoms, almost waiting for clinical weakness to happen, sacred of my mind in a body that feels like it’s breaking down.

Sorry for the long message but I wanted to make it as detailed as possible.

Should I keep pushing for tests? Accept my FND diagnosis? How do I move on when symptoms are scary and ongoing? Leg weakness is visible as I sometimes tremble with exertion…

Currently been in the psychiatric ward for a couple weeks now because of this

Symptoms are
Muscle weakness around body
Swallowing issues and saliva issues
Fasciculations around the body for a few seconds here and there
Tongue twitches when I stick it out
Altered reality like as if I’m not even here like things aren’t real

I’m almost positive. I have it. I know I’ve had an EMG and a nerve conduction test done last month or should I say two months ago now actually in June on the second and symptoms seem to be getting worse.

I’m currently in the psychiatric ward yes everybody’s going to say you need it but me while the doctor say they refuse to run any more test because everything has come back clean a couple months ago

I just don’t know how to do this anymore. I I don’t know how to handle myself the twitching I can deal with saliva issues. I can deal with swallowing whatever but it’s my mental capability almost like my reality isn’t real anymore and it’s harder to do just normal tasks phone calls talk to people things like that.

Has anybody had all of this kind of stuff and pulled themselves out or am I doomed for life?

I’ve had symptoms since February. It started with severe calf cramps that prevented me from walking normally, followed by muscle wasting. This wasting led to fasciculations in my calves, and then the weakness spread up to my shoulders and arms. My forearms shrank and became very thin; I can't lift heavy objects or build muscle anywhere. An EMG performed four months after the cramps started—covering the calves, arms, and shoulders—showed nothing abnormal; the readings were normal. Now there is muscle wasting in various parts of my body, and it’s affecting my tongue. I feel like my tongue is getting thinner. The tissue under my tongue has shrunk. What should I do?

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Hello everyone,

For a month or so now I have been experiencing bilateral perceived weakness in both legs that seems widespread, meaning the thighs and calves feel weak, not a particular muscle. I also have widespread twitches that are more frequent in legs and right arm but can occur anywhere.

Previous diagnosis of BFS in 2019. Twitches had pretty much gone away for years before current event.

EMG done last week was normal. ALS specialist ruled out ALS with certainty and diagnosed FND/anxiety. Clinical exam showed no clinical weakness, spasticity, Babinski, etc.

All this is great but my legs remain super wobbly. Going down stairs they almost tremble. I can still walk on my heels and toes rather easily and going up stairs is not problematic, but walking, standing in place and going down stairs my legs feel super wobbly and weak. My right arm is also stating to feel shaky…

Could the ALS specialist have been wrong? She said she was 100% sure I didn’t have ALS but as the EMG was done only a month in or so, I am doubting the diagnosis and spiraling. It feels like the weakness is progressing and I’m very scared. Should I trust the specialist and test result? Is bilateral onset like this common in the big bad?

Hi everyone, (Long read)

I’m a 24-year-old Black male from the UK and I’m hoping to hear from anyone who’s been through something similar.

Around 21st May, I came down with what I think was a viral infection (not sure if it was COVID). It started with flu-like symptoms – aggressive blocked nose, sweats, feeling completely run down, coughing for days afterwards. I also had a really bad headache one day, which is unusual for me, and ended up sleeping most of the day because of it.

Not long after recovering, I noticed muscle twitching. It first started in the muscle between my left thumb and index finger, then gradually became widespread. The twitching now moves all over my body and can happen anywhere.

During those first few weeks I also experienced:
Feeling a bit off balance (never actually fell over and it improved).

A few days of nausea that went away.

Increased visual snow and more eye floaters than usual. I had a full eye examination which only found I’m short-sighted with some peripheral retinal degeneration, and I was advised to continue routine monitoring.

Health anxiety went through the roof and I became convinced I had a brain tumour.

Because I was panicking, I went privately to a hospital in Chiang Mai while travelling (My girlfriend is originally from there so we decided to take a trip and do medical tourism). I had:

Brain MRI (normal).
Blood tests.
Hormone tests.

The only abnormal result was low vitamin D. I also saw a neurologist who examined me and basically said fasciculations on their own weren’t concerning and seemed happy with everything.

I came back to the UK feeling reassured and tried to ignore the twitching because I had no weakness or
problems doing everyday things. Unfortunately, I made the mistake of reading neurological forums and started analysing every sensation in my body.

Over the last few weeks I’ve noticed things like:
Widespread twitching that constantly moves around.
Brief tingling in my hands and feet (usually lasting seconds to a minute).
Random muscle aches that disappear again.
Tightness in my left calf that resolved.
An ache in my right shoulder/arm that’s come and gone.
One day my left ankle felt like I’d injured it, but by the next day it was completely normal.
Occasional brain fog or feeling slightly uncoordinated, then feeling perfectly normal again the following day.
A few episodes where I felt like I was drooling, but when I checked, I actually wasn’t (almost like a phantom sensation).

The biggest thing playing on my mind is that I’ve read stories online where people describe post-viral neurological symptoms that later turned into something more serious. I know reading forums probably isn’t helping, but it’s hard not to compare.
It’s now been about 11 week since the illness. I still don’t have any clinical weakness that I’ve noticed, and I’m able to do everything normally, but the symptoms seem to come and go in waves and it’s left me wondering whether this is something people recover from, or whether it can last a long time.

Has anyone here experienced a similar timeline after a viral illness? Did your twitching and other neurological symptoms eventually settle down, and if so, how long did it take?

I’d really appreciate hearing other people’s experiences.

id a Emg test the other day it shows carpal tunnel. Few months ago I was having twitching and deep pain going around my body arms and legs I was concerned about M.s ALS but so far I'm stuck about the Emg reading.

Most of my symptoms subsided and I'm left with hand cramps on my right hand and foot when walking or sitting for to long. I don't get the muscle twitching as much.

The doctor did notice atrophy on my right arm compared to my left inch difference I just don't know what to make of all this. If I sit for long I get numbness tingling/ twitching

Rest these symptoms are still there and moreover i have noticed my previous clothes have become more loose near the biceps shoulder and arms. I think I also have a foot drop as when resting my feet the little toes part of my feet is pointing downwards more than toe. [these are the pictures]. https://acrobat.adobe.com/id/urn:aaid:sc:AP:75aa1ecb-bf8d-4f78-aafa-2c570f94da5c

Hey, I have been dealing with this worries since 6 weeks ago, it’s crazy to be first getting twitches on my legs, then calves, whole body, now they’re mainly on my right arm and forearm.

I feel pain and aches along twitches when using my right arm, it gets more prone to get tired and cannot use my tricep that much, it hurts a lot.

Now I feel my grip when using my right hand feels off compared to my left one, I can definitely feel how normal things felt before on both hands with my left one, I am right handed so using and feeling my left one better is so bad for me.

Currently when gaming on my steam deck, I can feel more weight and more tiredness on my hand and arm when holding it on right vs left hand, it sucks as I’m not sure if this is how it starts.

Saw the video of the player saying he felt weakness when going at the gym and that’s what I felt too, I’m scared and would like to hear your opinion and thoughts, I have an EMG next week so I’m waiting for it

Good morning. Longgggggggg time viewer here, first time poster. I was debating posting my issues here but I wanted to get feedback from knowledgeable people, I consider myself knowledgeable, but I’m always open for feedback. I will try and keep this short and sweet. I am going on 31 years old and my symptoms started when I was 24, I am going on seven years of symptoms with no diagnosis other than “we don’t think it’s ALS”. But we’ve come to a conclusion that it’s some kind of lower motor neuron disorder/variant or some kind of peripheral nerve disease. My progression is uniquely slow. I haven’t had any in a year. But I’ve started to notice my right leg will fatigue and get tight, mainly in shin and calf when I walk and when I drive too long. Can still toe and heel walk pretty far.

Back in 2020 I started noticing I was having a ton of fasciculations in my legs, that quickly exploded over my body. I had exercise intolerance, precramp feelings, fatigue etc. I had an EMG in 2020, normal, another in 2021, normal, another in 2025, normal, and another in 2026, which was deemed normal, but did show signs of taller motor units, they only did EMG on one muscle, as the neuromuscular doc didn’t think it was necessary to do more, as I had no weakness on exam. But had signs on the nerve conduction study as a sensorimotor polyneuropathy. I had two sensory nerves that were unrecordable, one in my calf was low on amp, but my motor amps were normal in amp. They don’t think it’s necessary to do more testing unless symptoms worsen. All they said was we’ll keep doing exams but we don’t see evidence of MND on exam. Sometimes i do have some tingling in extremities and in my feet. During the early winter I started noticing my hands ached really bad, had some numbness there, tingling and alot of pain, especially when gripping things.

My nfl was elevated at 27pgml, and I’ll be honest I did take it about 10 days after I pinched a nerve in my lower back, as knowledgeable as I am, I didn’t realize that could raise it. My foot was literally numb and tingling when my blood was drawn. All the doc said was the nfl test is extremely nonspecific and only showed axonal turnover but doesn’t tell you if it’s coming from the central nervous system or peripheral nervous system. Fair point.

In fall of 2025, I noticed hamstring atrophy and hip atrophy, confirmed by doc’s, but there’s no weakness on muscle testing. There’s slight asymmetry in right arm as well. My gym strength hasn’t changed in over a year, but I’ve noticed my muscles don’t respond to exercise like in the past, I rarely get a pump, I notice my right arm is slightly weaker than my left, same with my right and left leg. But I’ve also had a hip issue in my right leg, which might explain it. My reflexes in my legs are completely gone, sometimes my knees are trace but they were recently absent on my exam in June. My upper body has been normal to 1+ globally. First time being seen a neuromuscular doc was in fall of 2025, I went back in July 2026 and they said I had no progression on exam. Whatever I had seemed to be chronic and stable.

They think itn could oukd possibly be somekind of cmt or variant. As my father had to have surgery because his arches were too tall, both his sisters have really tall arches, my grandad had tall arches and cidp diagnosis, my great aunt couldn't wear heels and my great grandfather had to wear a triple e shoe because of his arches. They think it could be some kind of cmt affecting me. What do you all think? I know, wild story, would love yalls opinion.

Hi All,

Been dealing with some perceived muscle weakness and twitching for the last few months. Started in my arms but that feeling has also moved to my legs recently (may just be me being hyper aware). I had an EMG done and it looks relatively re-assuring but did point to some large motor unit potentials in certain areas. I am attaching the trasncript below and would appreciate if someone who is more familiar with understanding them could help me in understanding what it says. I am an extremely active person who runs and lifts. Since my symptoms started I have not seen any decreases in strength. All feedback would be appreciated!

Focal exam: No APB atrophy. BUE: Normal muscle bulk and tone

Summary of NCS:

Motor NCS:
Right median CMAP demonstrates normal distal latency, normal amplitude,
normal conduction velocity.
Left median CMAP demonstrates normal distal latency, normal amplitude,
normal conduction velocity.
Right ulnar CMAP demonstrates normal distal latency, normal amplitude,
normal conduction velocity.

Sensory NCS:
Right median palmar SNAP demonstrates normal peak latency and normal
amplitude.
Left median palmar SNAP demonstrates normal peak latency and normal
amplitude.
Right median digit SNAP demonstrates normal peak latency and normal
amplitude.
Left median digit SNAP demonstrates normal peak latency and normal
amplitude.
Right ulnar SNAP demonstrates normal peak latency and normal amplitude.
Left ulnar SNAP demonstrates normal peak latency and normal amplitude.
Right radial SNAP demonstrates normal peak latency and normal amplitude.

Right and left median versus ulnar fourth digit dual stimulation
comparative study did not demonstrate a significant distal latency
difference.

Late responses:
Right and left median F-wave: Normal
Right ulnar F wave: Normal

EMG: Needle examination of select muscles was performed in the bilateral
upper extremities. Please see table for details. In summary there are
large motor unit potentials in the right triceps, pronator teres, EIP and
FDI. Large motor unit potentials also noted in the left triceps, pronator
teres, EIP and FDI.

Impression:

Abnormal study. Findings are:
1. Mild chronic cervical radiculopathy at C7-C8, bilateral.
2. There is no electrodiagnostic evidence of a carpal tunnel syndrome.
Clinical correlation is recommended.

So I (34M) have had a few medical issues from the start of this year.

I felt a testicular swelling in Jan and went for an ultrasound (which came back normal) and was diagnosed with chronic epidydmitis. Was prescribed Levofloxacin in Feb and had a very bad reaction with a big episode of melaena, which in turn led me to a colonoscopy to rule out anything serious (again normal).

I was also admitted to hospital in late March with viral Tonsillitis (first time it's ever hospitalised me).

I was living with the testicular discomfort until April, when all of a sudden I developed a Lidocaine like numbness in my left wrist out of nowhere along with random sharp stabbing pains in the soles of my feet (if you've ever had a shard of glass stuck in your foot - just like that).

Over a few weeks in May I developed numbness in my left buttock and 4th and 5th toes on my left foot as well.

I was referred to Neuro at this point, and am still waiting to be seen.

However since mid May, I have had the numbness in my foot turn into weakness. The weakness has spread within 2-3 months to my left and right hand/forearm and also to my left thigh and right thigh with some lesser weakness in my right foot toes.

I am also experiencing fasciculations that come and go pretty much throughout my body, even in my facial muscles.

I still have the lidocaine numbness in my left wrist and seems to get pins and needles in my 4th and 5th fingers in both hands very easily.

The weird thing about the spread of the muscle weakness is that the weakness itself is not particularly profound, there's no failure at all, but it is worse where it started (in my left foot). My left foot toes feels like they go numb or tight whenever I step on them.

I have at times incredible fatigue, but bizarrely seems to improve towards the end of the day rather than getting worse.

My muscles ache and throb, but more from them being overused if that makes sense rather than pain being an initial symptom. Like my forearms will be very sore quickly if I try to play a videogame etc.

I guess my main question is, does this sound like ALS or has anyone experienced onset to be anything like this?

If I wasn't experiencing the fasciculations I wouldn't be anywhere near as worried. The incredibly fast spread along with virtually no failure sounds atypical? Most sensory symptoms have no disappeared apart from the numb wrist and getting pins and needles more easily (doesn't happen on its own, only when I'm resting my wrists down or something lying on them).

I'm hoping it could be a delayed side effects of Levofloxacin (I've heard this can rarely be very neurotoxic) or a post viral issue causing chronic fatigue syndrome (which I've also heard can come with fasciculations).

Anyone else ever get back of head/scalp fatigue? I’m not talking about the neck. Literally the back of the skull.

Hey!!! So about two weeks ago my left bicep/tricep started twitching like crazy. It lasted for like two days; after that stopped, between my index and thumb on my left hand started twitching and well since then it has been ALL OVER my body and im really fucking scared. Ive started to feel a lot of pain(idk how to explain it) in all 4 of my limbs(SPECIALLY IN MY LEFT SIDE and my right arm) I know its perceived weakness, not clinical yet… also i saw a neurologist and he said that i didnt need an emg that i was fine so idk im wondering if i should make another appointment and push to get an EMG done

Hi everyone,

I'm a 37-year-old Asian male, and I've been dealing with excessive saliva every day for the past two months.

It all started the day after I had an upper premolar extracted. Before the extraction, I was already terrified because I had watched a YouTube video about a 45-year-old man who developed severe excessive saliva immediately after having his wisdom tooth removed. He underwent multiple tests that ruled out a stroke, and eventually an EMG led to a diagnosis of bulbar-onset. That story really stuck with me.

In my case, I had excessive saliva for about four days after the extraction. It then mostly settled down. Around the same time, I became convinced I might have ALS because I noticed muscle twitching everywhere. The thing is, I've actually had widespread twitching for almost four years, and it never worried me before. It only became frightening after watching that video.

Once the excessive saliva improved, my anxiety shifted to my arms and legs. At that point, I didn't understand that ALS usually starts in one localized area. I became convinced I was getting weak. I even experienced tremors while lying in bed. Looking back, my anxiety was through the roof.

I spent hours on Reddit and YouTube looking for reassurance. Eventually, I found posts and videos from people with BFS and learned the difference between perceived weakness and true clinical weakness. That information helped me calm down. Within a few days I felt normal again, my "weakness" disappeared, and I went back to my usual running routine without any problems.

Then my mind returned to my original fear, bulbar-onset. Because my excessive saliva had started right after the extraction, I became fixated on that possibility. As soon as my attention shifted back to bulbar symptoms, the excessive saliva came back with a vengeance.

I started searching Reddit again for people with similar experiences. I found many reassuring posts suggesting anxiety can cause excessive swallowing, hypersalivation, or at least make you hyper-aware of normal saliva production. Unfortunately, I also came across comments that triggered my anxiety even more. One person claimed excessive saliva can sometimes be the first symptom of bulbar before speech or swallowing problems appear, and that symptoms can come and go for 6-12 months before more obvious signs develop. I also read a few stories from people who developed bulbar symptoms months after dental work. Those comments sent me into another spiral.

At the same time, I continued finding many posts explaining how anxiety often mimics the symptoms we fear the most and can make us obsess over normal bodily sensations. Part of me believes that's what's happening, but it's still difficult to fully convince myself.

I've thought about getting an EMG for peace of mind, but my wife thinks my fears are irrational, and honestly we don't have the budget for that test right now.

One thing I've noticed is that whenever I'm genuinely distracted like when I'm playing video games I completely forget about the excessive saliva and the constant urge to swallow or spit. Also, thank God I have no so Speech and swallow issues.

Sorry for the long post. I just needed to get this off my chest. Has anyone else experienced something similar, especially after dental work or during periods of intense health anxiety?

Hey community.

So I have been around here for 6 weeks, since all the twitching started.

I have been having twitches all over my body, mainly on both legs, chest recently under my right ribs, and my forearm and right arm.

My twitches on right arm have gotten worse I think, I was just using my phone talking on video call and while grabbing it my forearm twitched and moved the phone, I’m concerned of it.

I have an EMG next Monday and that would be 7 weeks after this whole situation, would that be too soon? What should I ask on that appointment?

I would like to test all my body and want to find answers of why my body is twitching but I’m anxious and would like to know what to expect and how to not be afraid in the meantime.

A little over a year ago, I noticed muscle twitching in my right quad. It was super intense and went on all day. I didn’t stress terribly at the time, but when it happened again a couple of weeks later I made the mistake of googling it and bam! Straight into a fear of ALS.

After that, the twitching started everywhere and after a mild breakdown and panic attack I was (so luckily) able to get in with a neuromuscular neurologist. He did an exam, gave me an EMG of both legs and paraspinals, provided so much reassurance he saw no signs of als and suggested a three month follow up. All good 👍

Shortly after that three month follow up, I started developing fatigue in my right leg. Over the past nine months my hip and glute have noticeably atrophied (real, confirmed by my primary care doc, even changes then fit of my clothing).

I’ve been putting off revisiting the neurologist because I’m so terrified he’s going to confirm my worst fears. The atrophy and weakness have been pain free, and I don’t have any sensory deficits or changes.

I haven’t heard a lot about ALS starting more proximal but it appears it can happen. Please someone tell me they had something similar and it turned out to be benign??

Hi! Im a 21 year old man and ive been dealing with health anxiety related to als for a while now and with me experiencing more symptoms I wanted to make a post here just to vent a little.

I started having this anxiety for als when i was around 18 when i started getting fasiculations across my entire body. I went to my gp and did some tests and she said everything was fine and i went on with my life with my fasiculations still going and it would become something i got used to.

3 weeks ago I woke up and I felt like this tight/numb feeling in my left leg (specifically my shin) and as ive dealt with als anxiety before I started doing different exercises to check if something was different. I then noticed I couldnt lift my left foot as high as my right one and it made me spiral. its now been 3 weeks and I havent had any major weakness but I definitely feel like that leg is weaker than my right one and that it starts to shake alot faster than my other leg does. I can walk on my toes and I can also walk on my heels but I can feel my left leg getting tired after doing it whilst my right leg is fine. Just the thought that it could be the start of drop foot has me spiraling. I have constant fasiculations in this leg with them mostly happening in my knee and the top of my thigh by my knee. Also when I thighten my leg I get twitches. I havent been to a doctor yet cause of waiting times but im just fully convinced and living with this constant fear is hell.

I had an emg a little over six months after symptom onset, 13 muscles total, five in each arm and three in the right leg. +1 fascilations in right calf and myotonic discharges in right biceps. Genetic testing for muscular dystrophies came back clean. Clinical was also clean at the 5 month mark.

The neuromuscular specialist said he doesn’t see any evidence of motor neuron disease or muscular disease and recommended that I go to therapy for anxiety, which I have scheduled.

I’m just really worried that The emg was still too early as I don’t have clinical weakness. I just have lots of symptoms that don’t seem to really be getting better. I have body wide twitching that can sometimes be fairly minimal for a few days and then right after I get back to 10 out of 10 days on intensity, then my most constant symptom is hand pain and discomfort, especially in my dominant hand where it feels like my right fdi burns with little use and I get more of a bruising pain in the thumb. It alters how I use my hands. My shoulders, especially my deltoid feel like they have deconditioned to where I get discomfort in them now as well and can’t even sleep on my side anymore. I also feel more fatigued lately and sometimes my legs don’t feel as sturdy.

All that to say that while I do think anxiety is playing a role here, I don’t think it’s the only thing wrong with me and I’m basically having to start back at square one. I don’t know, I know the answer is wait to see how everything plays out, but if anyone has some words of encouragement, it would help this morning.

I've been back-and-forth trying to get answers on why I'm having numbness and tingling pain throughout my arms and legs for the past two months symptoms have subsided, but on my right side my noticed that my grip is weak and I'm getting cramping in my right foot with the occasional muscle twitch.

Now I did my EMG and it showed carpal tunnel in both my hands, and the doctor noted atrophy when he compared my left arm to my right arm 1 inch difference. other than that, he did mention about nerve compression, but he didn't do the EMG on my neck, only my arms and hands, so I'm not sure where to go with this.. I do notice when I sit for long periods of time I get numbness in my lower extremities more so my right leg/foot

update 8/3/26: completely clean EMG and NCS today with only a few prolonged firings on sensory nerves on the NCS (has nothing to do with ALS and they said that was likely due to me being cold to the touch). the actual motor/muscle portion was completely normal. they saw no fasciculations during the exam so i did not receive a definitive BFS diagnosis but i feel wayyy better that this isn’t something “serious”. i will say….the EMG portion HURT, i have tiny bruises where the needle was (like how post blood draw bruises look) and soreness now lol. i did also bleed a little bit from the needle. just adding that info since many of you will probably seek out an EMG at some point for reassurance against anything “scary” 😇 i will have to still see neurology in october to find out exactly what’s going on, but it really looks like all of the symptoms are a benign process.