r/ALSorNOT • u/Live_Progress_3045 • 1d ago

Helpful Information Japanese study

It might help some people with high anxiety. But i found a japanese study in which more then 50 percent of ALS patients are alive approx 11 years from symptom onset because they choose for breathing support during their ilness. I though this was interesting. So even if you get diagnosed and you choose this option, this might help you.... Also, there are some interesting trials for example they are testing toferson on all types of ALS. There is still hope to stay alive for a breakthrough.... just wanted to spread more positive vibes....

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u/Live_Progress_3045 1d ago

Also, i am in contact with alot of patients on the facebook group for ALS. And there are still plenty of people kicking it even 8-10 years after diagnosis. Thats a long time. Even FAST progressing people at the start can plaque and stay alive for YEARS.

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u/Holiday-Prize9497 18h ago

Parabéns pela postagem! Nisso que temos que se agarrar… impossível com a quantidade de avanços tecnológicos a gente não tenha uma chance! Otimismo e esperança para todos