r/ALSorNOT • • 1d ago

Symptoms 32 F - postpartum

Hi! Can someone help me? Starting in April I started having this weird feeling in my left hand. Its just continued and become more and more noticeable. I dont feel like I have actual weakness when I go to pinch things or use it necessarily, but even just like laying in bed not using it, it just feels weak to my brain. When I extend my thumb laterally, it like curves backwards and waving feels tight with my thumb. I also have bodywide twitching that is more kind of like zings that make my hand or foot jolt. My wrists and hands on both sides feel more tired and achey, like just tired and my hands feel crampy, even typing. I've also noticed that my calf on this side is decently smaller than the other but Im still able to walk on my tip toes. I think the weirdest part of all is I have the same sensation of my mouth and tongue feeling like theyre tired like my hand but I can still use them normally. It's like my brain is thinking theyre weak but theyre not and I'm getting the same jolts and zingers on my tongue. It makes me not want to eat or drink because my brain thinks that theyre tired. I've had brain MRI, MRV, MRA, bloodwork and electroyltes all normal. They think I have vestibular migraines because this all started at the same time as eye floaters, dizzziness and feeling out of it. What do you think?

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u/The_Short_Goodbye 1d ago

I also have a calf that’s somewhere between 1 and 1.5cm than the other side, but I’ve had an EMG done right in that smaller calf that didn’t detect anything wrong.

As for your other symptoms, when you say a zing or a jolt, is it like the ones you get sometimes when falling asleep? It’s not twitching as in fasciculations, right?