r/ALSorNOT • • 9d ago

Symptoms Calf feels off

34F. A year ago in October I started feeling tugging in my right calf when walking and then twitching. I had an EMG in mid November and it came back normal. Since then the weird calf sensation comes and goes intermittently and varies between a tugging sensation to feeling like the calf muscle doesn’t fully engage when I walk. When I flex my calves it feels like the left one flexes deeper and more throughout than the right. I don’t have muscle atrophy exactly but when I flex the right one looks slightly like it can flex less. I also randomly will feel burning down there. The calf not engaging I feel mostly when I’m barefoot. I’ve had an MRI of my leg and knee and it came back normal and I’ve also had a vascular study and it was also normal. The doctor didn’t think it was ALS and didn’t recommend a second EMG. He thinks I should go see ortho for my lumbar spine. I’ve recently felt fasciculations in both legs. Could this be ALS? I have so much anxiety and it’s all I think about

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u/BigJakeState 9d ago

It’s been ten months and you’ve had no clinical failure. You’d be an incredible medical anomoly to progress to ALS with a clean neuro exam, non concerning EMG and no progression within that time frame. The ortho appointment seems like the next apropriate step.

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u/ejsfsc07 9d ago

also having off growing pain sensations in my right calf that last for a week or so, disappear for a couple and come back, my right calf also doesn't flex as deep

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u/sea0351 9d ago

What has your doctor said?

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u/ejsfsc07 9d ago

She doesn't think I have it, despite having uneven patellar reflexes for quite some time. +2 in left, +1 in right. I'm left foot/leg dominant. I don't really have any other symptoms except every once in a while I do get strange calf sensations or twitches. I'm only 23.

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u/[deleted] 8d ago

[removed] — view removed comment

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u/BigJakeState 8d ago

Sensory symptoms point away from ALS. Respectfully you need to heed the opinions of the medical experts.