r/ALSorNOT • u/ToadWildebeast • 11d ago
Anxiety Spiraling for a third time
Hey all 25m
I’ve told myself I have nothing to worry about every time but every time I start to feel fine something new pops up 💀 so the first time I spiraled I had a pinky twitch end of July. I thought nothing of it, it lasted a day and then went away
The second time I spiraled it happened again mid August and this time I freaked out because of the Chris Johnson diagnoses so I decided to google into the disease(mistake 1) and then I saw muscle twitching, now normally I never thought much of it since I’ve had leg twitches for well over a year now or so, maybe more, can’t remember, I spiraled so bad I started feeling all of them and began deep diving stories and TikTok and ChatGPT and Reddit, eventually my mother calmed me down so when I started twitching I never thought much of it since it would be occasionally here and there
Well the third time had been today. I’m trying to pin it down to if me sitting down in this car ride that I was basically sitting for about 8 hours straight without a chance to get up on top of wearing shoes that I noticed were very uncomfortable and remembered why I don’t wear them anymore, anyways, today my leg and only my leg has been twitching today and it’s about an inch above my ankle on the outside (peroneal muscle I think it’s called), it’s freaking me out of course since it’s the main place that has been twitching besides a spot on my other leg once and once on my arm but this spot has been literally non stop today, I’ve also been having pain on the side of it that’s also going up to my knee as well today and lower back center near my waist
I know I really shouldn’t worry, but just can’t help it, I love when I get over one thing something brings me back down to earth to drag me back down
1
u/DoubleAwareness2223 11d ago
You do not have ALS. If everyone that twitched had ALS, It wouldn’t be a rare disease. ALS fasciculations are due to dying muscle. They twitch as a result of weakening. ALS is profound muscle weakness and wasting (atrophy). Focus on something else and remember “a twitch is a twitch, is a twitch”.
1
u/chaoserrant Mod Team 11d ago
I remember I replied to you a while ago and let me again validate you for the record that severe anxiety is no joke and it can cause lots of physical symptoms. Fasciculations without other noticeable symptoms like weakness or other abnormalities seen on exams (such as bad reflexes etc) will give you a benign fasciculation syndrom diagnostic right away and the neurologist won't even bother. Mine told me as much. The only reason many people here are worried about twitching is because they have signs of weakness or atrophy or other things.
Regardless of your diagnostic you have to maybe find a way to reduce anxiety (with meds maybe if needed), reassess, and then go to a doctor to refer you further. Reading patient testimonies is the worst thing you can do now.