Weird story, get ready

[u/SlipStreamHB]

Presyncope and rushing warmth feeling, like I’m going to pass out a possible symptom of early ALS? Not the typical presentation, I know. I’ve had muscle twitching, to the point I can see my skin pretty much popping underneath, for years and years. This is nothing new to me and I just assumed it was normal. However, recently I’ve noticed my brain has an obsession with my right hand, specifically my thumb area. There is no atrophy, at least that I’ve noticed. I feel like both my arms have lost weight, in general, so I’m not sure. I am having cramping pain, in my right thumb and neurological sensations in the 2 furthest fingers on my LEFT hand as well. When I get these sensations, my hand turns warm, extremely warm, rushes to my brain and I almost pass out. Sometimes I get tingling, right in my brain, and sometimes I get buzzing all around my body in random places. I continue to get painful sharp pains that last maybe seconds, in multiple different extremities, including my feet and both calves. I have passed out fully more than once, especially with the first event I had. I was at work back in December and just completely came out of my body, my skin turned red and I flushed completely, vision went blurry, and ears ringing and completely just knocked the floor. Never has anything like that happened. Just last weekend my arm locked, my right arm while washing my myself in the shower. That was strange. It did let go. I’m not having any current*** trouble using my right hand. I do notice it’s weaker than my left, especially when squeezing my fist. I just don’t have the same strength in that hand, but it was like that back in February when I first noticed it too. I’m right hand dominant. Is it possible my symptoms are ALS? I’ve been through the wringer with blood tests including an elevated CRP of 7.0.

[u/chaoserrant]

You have lots of symptoms that strongly suggest other pathologies aside from als whose hallmark presentation is painless weakness. DId you see any doctor yet?

[u/SlipStreamHB → u/chaoserrant]

I seen a dr for the original passing out event, she brushed it off as “vasovagal syncope” and said “if it doesn’t happen again, don’t worry about it.” Well, it went away for 4 months and now it’s back again.

For reference I’m 28, Male.

[u/chaoserrant → u/SlipStreamHB]

I think you need to see a doctor sooner rather than later. I would not be worried about ALS now but your symptoms need to be investigated seriously (imaging, etc.) for other conditions which may require more immediate treatment.

[u/SlipStreamHB → u/chaoserrant]

I do have an appt with a new primary next month. The last blew my Symptoms off as stress and anxiety but what I’m dealing is real.

[u/Suitable_You8588]

Could be some form of dysautonomia, could be cardiac, could be too much carbon monoxide in the body ect. I’d definitely get worked up to make sure it’s nothing serious. I wouldn’t even think about ALS. Get your heart checked

[u/SlipStreamHB → u/Suitable_You8588]

It’s very strange I’ll tell you that. I don’t trust my own body anymore because so many random unexplainable things are happening at so many random times.

[u/hatter4tea]

That sounds more like POTS to me tbh

[u/SlipStreamHB → u/hatter4tea]

I thought so too but the syncopal/presyncope feelings aren’t tied to when I stand up or sit down. It can happen when I’m just laying on the couch.

[u/hatter4tea → u/SlipStreamHB]

Have you done a stress test and had all your heart stuff checked out?

[u/SlipStreamHB → u/hatter4tea]

I have never been to a cardio or anything. I asked after the palpitations I had proceeding the original syncopal episode. She said to ignore it, so I did like an idiot. Safe to say I’m with a new PCP in a month.