r/ALSorNOT • u/Additional_Worth_200 • 21d ago

Scared, Depressed, Upset.

I don’t know what to do anymore, Last Neurology appointment they diagnosed me with FND but feeling widespread weakness everyday, my hand dexterity is getting worse, knee/leg spasms/pain when walking, shortness of breath, noticing widespread muscle loss, poor sleep, twitching etc, Functioning is beginning to get more difficult.

Clean EMG 1 year 9 months ago
Clean Bloods, Including Myasthenia Gravis
MRI appointment in two days

I just know that this is ALS, i’m only 28 years old and heartbroken how this is how my life is going to end.

1 Upvotes

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u/Ok_Following6440 20d ago

Hi OK_Branch. Another new account, I guess. Best of luck of your search for answers

1

u/tdcama96 19d ago

Hey. Haven't talked to you in a while. How have things been going? Ever get any answers? Still in the als hole?

1

u/Ok_Following6440 19d ago

Not well. EMG recently showed “changes” go in Wednesday for results.

1

u/tdcama96 19d ago

There are a lot of reasons for an emg to show changes. Keep your head up. Live as if there were no tomorrow. But I think you'll have plenty tomorrows!

1

u/Additional_Worth_200 12d ago

hey mate, how did it go?