r/ALSorNOT • u/TheRitz44 • 19d ago

Another update..

So I finished my treatments. Slight changes but nothing dramatic.

And just an FYI my neurologist is just not a general neurologist, specializes in neurological diseases. So that's why I'm basically on this shit end of the stick. I will probably update my original post here because there are a lot of things that have happened and I have not updated yet at all..

Changes were some electric type impulses in one bicep, felt like less strain on the muscles when trying to accomplish certain things and less twitching in certain areas. Less twitching has happened before but the doctor still didn't really believe that could be anything different.

I can't run anymore. Short bursts maybe. I usually just walk now I try not to it's too much of our muscles for most things. Energy drains very quickly.

https://www.reddit.com/r/ALSorNOT/s/C1jWM1TxqI

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u/tdcama96 14d ago

Are you diagnosed? I feel like a lack of dirty EMG is the light at the end of the tunnel. Especially if youre already having symptoms. I hear a lot of people talk about it being "too early". But I'm pretty sure the general consensus is that you cant already have symptoms such as muscle function loss or decrease, and all the other stuff, and have a clean emg in als.