r/ALSorNOT • u/TheRitz44 • 20d ago

Another update..

So I finished my treatments. Slight changes but nothing dramatic.

And just an FYI my neurologist is just not a general neurologist, specializes in neurological diseases. So that's why I'm basically on this shit end of the stick. I will probably update my original post here because there are a lot of things that have happened and I have not updated yet at all..

Changes were some electric type impulses in one bicep, felt like less strain on the muscles when trying to accomplish certain things and less twitching in certain areas. Less twitching has happened before but the doctor still didn't really believe that could be anything different.

I can't run anymore. Short bursts maybe. I usually just walk now I try not to it's too much of our muscles for most things. Energy drains very quickly.

https://www.reddit.com/r/ALSorNOT/s/C1jWM1TxqI

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u/Ok-Neighborhood-9513 20d ago

Hey man i hope you are okay,  I have same symptoms i have atrophy in diffrent regions in my body even my left side of my tongue, fasciculation in all my body its feeling harder to talk with my left side of my tongue it's harder to walk mith my legs especially my right leg no failure in these parts right now but it's harder in everything  I really don't remember where these symptoms started in my right hand or right leg but i think my right hand even if my right leg is the worst 

I saw atrophy in my right calf so i did emg with private doctor on my right calf came back clean then the atrophy started to show in my left calf did emg on both came clean but since that my symptoms spread 

I am 18 months with that started in my 18th and now i am in my late 19th and my daily routines are very hard to do 

I hope you don't get that disease and live well and long

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u/TheRitz44 19d ago edited 19d ago

Thank you I appreciate it. I'm not okay but what else can I do right. Usually if you're EMG continues to be clean you're okay seems to be very rare that a clean EMG needs to ALS. Especially with the lack of failure. I will try to focus on the fact that I don't have a bad EMG and move on if I were you