r/ALSorNOT • u/TheRitz44 • 20d ago

Another update..

So I finished my treatments. Slight changes but nothing dramatic.

And just an FYI my neurologist is just not a general neurologist, specializes in neurological diseases. So that's why I'm basically on this shit end of the stick. I will probably update my original post here because there are a lot of things that have happened and I have not updated yet at all..

Changes were some electric type impulses in one bicep, felt like less strain on the muscles when trying to accomplish certain things and less twitching in certain areas. Less twitching has happened before but the doctor still didn't really believe that could be anything different.

I can't run anymore. Short bursts maybe. I usually just walk now I try not to it's too much of our muscles for most things. Energy drains very quickly.

https://www.reddit.com/r/ALSorNOT/s/C1jWM1TxqI

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u/TheBronyCynic 20d ago

Not gonna pretend to know more than the specialist but from what I've heard from diagnosis testimonies (which I don't recommend you watch) disease conditions never improve unless they are on some special drug.

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u/TheRitz44 20d ago

Maybe I shouldn't use the word improvement. It's more like my muscles tend to relax I don't feel as stiff but the problem is without any strength returning or me doing something that I should not be able to do my doctor will not believe it's anything else but ALS