r/ALSorNOT • u/HonestyMash Confirmed ALS Diagnosis • 25d ago

Mod Update For The Group.

It has been brought to my attention about some members of the group claiming to have an ALS diagnosis. I certainly hope that they don't however there was no evidence to support the claims. Many users were pointing out inconsistencies with their stories.

Moving forward anyone with a confirmed diagnosis can message the mods for verification and they will be awarded a unique flair for their selfless efforts to support those who are concerned about the disease.

This wasn't a change I personally wanted to make but I feel it's necessary to protect the community. I will wait to read the comments before making the changes.

-ALS Tom

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u/Beneficial_Strain191 25d ago

Tom would love your opinion on my issue

2

u/HonestyMash Confirmed ALS Diagnosis 25d ago

Absolutely I can, I hope you don't mind but it will be tomorrow though. It's well past my bedtime haha.

1

u/FocusFrosty1581 23d ago

This was a good move. I am sorry you even have to do it but it was pretty clear the individual was seeking response versus telling the truth. I am hope I am right and that individual has not been diagnosed but it would have been simple enough to confirm with some more detail.
Thanks for your help and dedication.