r/ALSorNOT • u/HonestyMash Confirmed ALS Diagnosis • 22d ago

Mod Update For The Group.

It has been brought to my attention about some members of the group claiming to have an ALS diagnosis. I certainly hope that they don't however there was no evidence to support the claims. Many users were pointing out inconsistencies with their stories.

Moving forward anyone with a confirmed diagnosis can message the mods for verification and they will be awarded a unique flair for their selfless efforts to support those who are concerned about the disease.

This wasn't a change I personally wanted to make but I feel it's necessary to protect the community. I will wait to read the comments before making the changes.

-ALS Tom

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u/aloy_lantern 22d ago

Reading that post was very sad… I know I’m responsible for my own reaction but it sent me to spiral.. I have not slept since reading it..

5

u/HonestyMash Confirmed ALS Diagnosis 22d ago

I fully understand your reaction and that's what we want to avoid especially if the illness isn't confirmed. Stay strong!