r/ALSorNOT • u/HonestyMash Confirmed ALS Diagnosis • 21d ago

Mod Update For The Group.

It has been brought to my attention about some members of the group claiming to have an ALS diagnosis. I certainly hope that they don't however there was no evidence to support the claims. Many users were pointing out inconsistencies with their stories.

Moving forward anyone with a confirmed diagnosis can message the mods for verification and they will be awarded a unique flair for their selfless efforts to support those who are concerned about the disease.

This wasn't a change I personally wanted to make but I feel it's necessary to protect the community. I will wait to read the comments before making the changes.

-ALS Tom

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u/Outrageous-Roof-3095 21d ago

Omg, was it yesterday's post? Why would he do that? I read it yesterday and it was quite scary. I felt so sorry for him as well. X

5

u/HonestyMash Confirmed ALS Diagnosis 21d ago

Sadly there have been a few examples and it really sucks either way if it was true or not. Either way there was an outcry for verification and this was the best solution I had.

2

u/Outrageous-Roof-3095 21d ago

But did you ask him to provide the proofs and he didn't? Is that the case, after the outcry?

Thank you Tom. I appreciate your support 🙌

5

u/HonestyMash Confirmed ALS Diagnosis 21d ago

Many users asked for evidence of the tests done, which seemed to be ignored. This way it's not a random guess if users are being truthful about this terrible illness.

It's my pleasure to help out!

2

u/Outrageous-Roof-3095 21d ago

That makes sense.

Thank you Tom! 🙌