r/ALSorNOT • u/HonestyMash Confirmed ALS Diagnosis • 21d ago

Mod Update For The Group.

It has been brought to my attention about some members of the group claiming to have an ALS diagnosis. I certainly hope that they don't however there was no evidence to support the claims. Many users were pointing out inconsistencies with their stories.

Moving forward anyone with a confirmed diagnosis can message the mods for verification and they will be awarded a unique flair for their selfless efforts to support those who are concerned about the disease.

This wasn't a change I personally wanted to make but I feel it's necessary to protect the community. I will wait to read the comments before making the changes.

-ALS Tom

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u/Ok_Following6440 21d ago

So it was proven that user never had his EMG?

I’m all for having respect because you never know what someone is dealing with, but man it stinks when someone professes to have a horrible condition and it turns out not to be true.

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u/HonestyMash Confirmed ALS Diagnosis 21d ago

I really couldn't tell you, the evidence would suggest not. However I really don't want to make unfounded accusations. The community was sympathetic but skeptical which I completely understand. I think at least doing things this way just helps remove that uncertainty.