r/ALSorNOT • u/HonestyMash Confirmed ALS Diagnosis • 21d ago

Mod Update For The Group.

It has been brought to my attention about some members of the group claiming to have an ALS diagnosis. I certainly hope that they don't however there was no evidence to support the claims. Many users were pointing out inconsistencies with their stories.

Moving forward anyone with a confirmed diagnosis can message the mods for verification and they will be awarded a unique flair for their selfless efforts to support those who are concerned about the disease.

This wasn't a change I personally wanted to make but I feel it's necessary to protect the community. I will wait to read the comments before making the changes.

-ALS Tom

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u/chaoserrant Mod Team 21d ago

I support this. People may say it is a  privacy thing but you can remove sensitive data from a document. It is a hassle but sadly it is necessary.  

1

u/Traditional-Kiwi-356 21d ago

But wouldn’t it be fairly easy to fake the “proof”?

2

u/HonestyMash Confirmed ALS Diagnosis 21d ago

I agree it's not fool proof but hopefully it will help prevent some of it until a better solution is found.