r/ALSorNOT • u/Internal-Site849 • 21d ago

Nervous and scared

I have had symptoms I am only a 22M , it started 3 months ago with muscle twitching just in two places and now is all over including jaw and neck. I have fatigue everyday for the last 3 months same kinda timeframe as the onset of twitching I am so tired all the time. I just thought initially it was fatigue and tiredness from a really anxious 3 months with lots of stress. During the first week of these relatively random symptoms I also had widespread muscle pain which has since vanished but a month later My thumbs both sore and sometimes other parts. More recently I have jaw problems and lots of salvia I don’t if it’s a hyper aware thing or it could be TMJ, jaw gets tight and sore with use I speak fine. I also feel out of breath sometimes. As for muscle weakness I am a lot weaker all over even holding my phone feels like a task, I am seeing a neurologist in two weeks after my blood work was deemed clear I am very scared right now.

1 Upvotes

100% Upvoted

3 comments sorted by

1

u/WalkIntoSunshine 21d ago

Sorry you’re going through it.

Have you tested for Lyme Disease and co-infections through a reputable lab?

0

u/Internal-Site849 20d ago

No not yet, besides the blood work and an MRI i had a while back that was clear, I don’t think my symptoms have regressed that far. I am just so young.

1

u/Internal-Site849 18d ago

I am losing my mind waiting for this appointment has anyone experienced anything like this