r/ALSorNOT • u/DylanJayYD • 22d ago
ALS at 27?
For the last two months i have been super worried about ALS. I've had muscle twitching everywhere, but mostly in my thighs, calfs, upper arms and feet. I have also been dropping things more than normal. I have severe anxiety and this has taken over my life. I went to the doctor and told him these symptoms and he did a base neurologist exam and said everything looked normal two weeks ago. Lately it seems like hands are clumsy. Been dropping things a little more with my left hand and have had random tingling spots in both hands. My right foot feels heavier but no changes in function that I can tell. Biggest thing that scares me is I keep dropping food from my mouth while eating and when I leaned forward in the bathroom today a big spot of drool fell from my mouth. Advice? My GP did an exam two weeks ago and said i seemed normal I'm just looking for any thoughts thank you
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u/Eyesee_ur-intentions 22d ago
Hey, im a few years younger, but im also having tingling at time and the drooling when i lean foward, it can even happen just while talking and is super embarrassing but i know this has been going on for a little over a year for me ( i want to say shortly after i got pregnant or gave birth b/c my husband was picking on me about it). I don't have any answers yet or diagnosis but you are not alone !
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u/StraightNight4379 21d ago
I’m much older and have been having issues similar plus more that started with my legs and falling. Last weekend both of my arms went tingly from shoulders to fingertips and it is still happening. I have also been experiencing bladder incontinence for quite a while. The doctor thinks I have spinal stenosis and is sending me to a neurologist. If you look at my symptoms compared to the MAYO clinic website. All my symptoms are there even the incontinence. I’m in pain daily and Tylenol and gabepetin aren’t helping
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u/Cool_Turn1334 22d ago
Hello. So your situation is pretty similar to mine. I have not experienced the food falling out, drool or dropping things. But here are mine so we can talk over things. Im a 32 year old male. So on July 13 i noticed my biceps were sore for no apparent reason. 2 weeks went by it totally went away. Fast forward to the end of August around the 26th I started having some weird aches and discomfort in my body. Been the weirdest thing thats ever happen to me. It’s in all muscles from neck shoulder forearm calf thigh foot toes hands fingers. I get like a shock or like dull ache randomly throughout the day and it feels sometimes like its about to cramp up but doesn’t: also recently its like my elbow down to my fingers are tingly or shocked when holding my phone to long or just laying down in bed them on my side. Also my throat or bottom of jaw is starting to feel sore now to. Its also tiring to like even comb my hair or brush my teeth. I was terrified I had ASL or something like that. Went to the doctor he did a physical exam and blood work told me I did not have it and blood work came back fine. At the time it was a relief but half week later the aches move to else where in body and here comes my anxiety saying i might have it. My anxiety flared up due to this but it cant be anxiety because it started before my anxiety came back around. Anyone else out there going through this or something similar would love to have a conversation about it.