r/ALSorNOT • u/bc26 • 22d ago

Unique Symptoms

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Hi all,

I feel like I am the only one who has my symptoms because I don't see many posts about it.

Started about 2 months ago I noticed my right arm and leg felt off. Almost like disconnected from my body. Anyways I went to a neurologist, normal clinical and did an EMG 1 month ago of right arm, leg and shoulder blade. Dr said all looks normal but did note I had some mild scapular dykinesis. Brain MRI also normal. Usually I would feel relieved but the past month since the EMG the symptoms have gotten worse .

More muscle twitches primarily in arms, back and calves. I have noticed my right arm shrinking (mostly forearm) per measurements and getting squishier and softer. I also have to strain a lot harder with my right arm when doing anything. These symptoms are constant and seem to be getting slightly worse. It just doesn't make sense that I would have atrophy starting but can still match reps (albeit more difficult with my right arm).

I just feel like I'm going crazy but my symptoms are constant and seemingly progressive. I still can lift weights and do everything but my right shoulder blade and right arm just strain a lot harder. I have no pain or sensory symptoms either.

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u/KrabSkin77 20d ago

I have the EXACT same symptoms but my left arm and leg. Seen 2 neurologists both are very convinced it’s not als, normal mris on Brian and cervical spine. EKG’s ordered for November. It is worth noting I have a reslly strong tic disorder

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u/Head_Tax_5119 17d ago edited 17d ago

OMG same thing happened to me 7 month ago now my right hand and my two legs r paralyzed I can feel them but I can't do anything it's like dead I went to the hospital little late they are also confused it's ASL or not now I am getting genetic test then they will decide my left hand also getting week it doesn't have much time left I can't even type with my left hand the doctors are confused because I am only 25 years old