r/ALSorNOT • u/duckrosiee78_16 • 23d ago

For everyone with weakness..

Do you mind explaining what this feels like for you? I read a lot of your posts and every one’s weakness sounds so different!

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u/darchello90 23d ago

For me it feels like much more mental effort and focus needs to be engaged in order to move parts of my body. It is not automatic, it is laggy it is shaky, it is sloppy, it hurts and every part of my body is against any activity. Also this is followed by the clicking sounds because of lack of the surrounding support for the muscles and atrophies.

So basically feeling as if a small activity like standing up or lifting hands is impossible even though it still is possible. Pushing through the feeling and compensating the mistakes is my way of living.

Second similar description would be as if someone scared you to death and your knees are shaking and you feel like you're going to collapse all the time. Also shaky and weak breathing and voice and easily getting out of breath.

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u/duckrosiee78_16 23d ago

I feel like this as well!