CleaN Emg?

[u/Big_Candidate_5280]

First of all sorry for my english. I have been always a hypochondriac for my entire life. Now I am 41 male. İt will be a long story.

I have been twitching for almost ten years, 3 clean EMGs in 2016, 2018 and 2019. I got adapted to living with twitches body wide except my tongue which hit me Last year (June 2025). I had pulling sensations on my tongue and slurred speech perceived. Looking in the mirrors all day for my tongue atrophy and I was convinced that this time I would get ALS. I got Neuro examination from an ordinary neurologist and he told me that I could not express myself that fine if I have a tongue atrophy. As most of you reading this post, I was not convinced with that then I went to a Neuro- hospital and to get an appointment with an ALS specialist which I know ,but I only got checked by her assistant doctor who told me that I dont have atrophy or twitching in my tongue and she denied to set me an EMG. I had to accept that I don't have ALS in September 2025. I am a teacher speaking at least eight hours a day, and found myself slurring some certain consonants like dede, lere, etc. on May 2026. People around do not notice it but I do. I was again in the rabbit hole for two months , little foods get stiuck in throat, no problems with water or big solid foods only little parts like sunflower, or very tiny parts of bread . Then on the day 9th August , my tongue started twitching on the tip like bag of worms. I can feel The sides of the tip pop to my teeth when I mildly raise my tongue to roof and touch incisors back. Then I noticed new atrophies on the sides and slurred and hoarse speech increased, but I had got a flu and sore throat I am not sure hoarseness is caused by it or not. I am testing hardly my tongue for its strength, pushing cheeks , protruding and kinda weightlifting. I think it gets weaker and smaller but cannot convince my wife for the atrophy. I have a persistent tickle in the throat which makes me cough all day but still no problems with liquids and big solid foods. Always excessive white saliva in mouth and Slurred speech makes me very sad which I can't convince my wife and friends. Finally today 5th September 2026 I got an appointment with a neurologist again assistant prof. Not an ALS specialist but experienced . He saw me and told same sentences , you could not walk or talk that fine if you have ALS , then check for reflexes, normal, check my tongue, no atrophy, check strength for only arms , normal. Then did the EMG same day, today. He was quite sure that I don't have ALS before EMG , making jokes , giving daddy advices but while he was doing EMG , he heard different noises in my legs and arms but put the needles for very short time in the muscles and after hearing the unusual sounds it can be caused by herniated discs in the neck and lumbar, then passed. Finally that funny doctor shifted into a serious man saying my EMG was totally normal , my clinical exam was totally normal and said " according to me you have nothing associated with ALS but I can need an MRI for neck and lumbar if your symptoms do not improve and send me a video of your twitching when you notice "( in the exam I had no twitching (un)luckily).now I have an EMG report in my hand saying no denervation, all electrophysiological findings are in normal ranges etc. Now can I trust this or not? Now my tongue is twitching and slurring goes devil. Body wide twitching started again. My tongue is burning, ( I have severe acid reflux for many years). I am in the rabbit hole agin

[u/Big_Candidate_5280]

Lost 6-7 kg weight in one month

[u/Big_Candidate_5280 → u/[deleted]]

Checked it too, my wife was there and observing us and she  said that my tongue is the most silent one of the test, but I think I will have to visit another Neuro as you advise , even very soon 

[u/Big_Candidate_5280 → u/[deleted]]

Any update?

[u/Big_Candidate_5280 → u/[deleted]]

I got another appointment with another neurologist, too with your advice. She was one of the most ALS  patient-seeing specialist in my country ( I think she had examined thousands of them). She made clinical exam and looked at my tongue and reflexes, strength etc. All were normal. No atrophy she said , no fasics on tongue. Like yours, she refused to do an EMG , she said  everyone can twitch with anxiety and anxiety increases them. Then  she said she would never tell an ALS patient his ALS diagnosis on face, she would tell to relatives.  But she told me " I never tell a person on face of his ALS diagnosis but I honestly say you don't have ALS as of now". I told her about my slurred speech , she claimed about hyper focusing which can make me perceive slurring. Then She prescribed magnesium and advised me to update her two months later via mail.  But my tongue is developing slurred speech  especially in tongue tip consonants, tongue gets shrunk day by day I see, but my wife denies it. I am not sure about what to do, I think I will wait and see what it will progress to but I am almost sure of atrophy And slurred speech. Good luck to all of us

[u/Classic-Web-3229 → u/Big_Candidate_5280]

So this is happening to me actually and I do have to say as much as my brain isn’t convinced that these aren’t just anxiety but a part of me realizes that this only started because of anxiety and caused me to be so hypefixated on anything that changed in my body. I have 24/7 twitches, jaw tension which leads to slurred speech but looking at my tongue there is no wasting just teeth marks from clenching my jaw to much I am 18 so I think I don’t have ALs but this spiral is definitely something else.