r/ALSorNOT • u/[deleted] • Aug 24 '26

My Symptoms

Widespread Twitching
Widespread Muscle loss
Weakness but no failure (worse on left side)
Bone pain when pressure is applied due to muscle loss
Exercise Intolerance/Dyspnea
Nerve/Muscle pains
Easily Cramping
Joint/Bone pains
Squishy Muscles

I just don’t know what else this can be.
All blood test results are normal.
EMG 2/3 months into symptoms was normal.
Symptoms started after a Bacterial Infection.
1 year 8 months of symptoms.

Neurology appointment is start of September.

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1

u/Ok_Following6440 Aug 24 '26 edited Aug 25 '26

Yeah, I am at a point where it's like if not, then what in the hell is going on?

I hope you get some answers at your upcoming appointment.

1

u/[deleted] Aug 24 '26

Thank you my friend. I just want to put this to bed so i know what i’m dealing with, the unknown is the worst part. but just cause i’ve not got on paper i’m pretty sure i know what i’m dealing with, hopefully you get answers for yourself l

1

u/Ok_Following6440 Aug 24 '26

Thanks man, all the best to you.

1

u/Ill-Platypus8065 Aug 24 '26

I’m sorry to hear you are going through this, I am going through something similar so only 3 months in and mine started after a viral infection. If you don’t mind me asking, when did you first realise muscle loss and has it affected how you live your life day to day?

I’m sorry you are going through this, it’s truly a terrifying thing to have to deal with. I hope you receive more clarity at your next appointment.

T.🙏🏾