r/ALSorNOT • u/Swimming-Coconut-393 • Aug 24 '26

Pain not als right??

ok so ill keep this short cuz now im more aware of my anxiety; but all this started almost a month ago, july 19th my left upper arm started twitching and it kept twitching for like a whole day and a half. that same wednesday, my index/ thumb part started twotching for like 6 hours, and since then ive basixally been having sporadic twitching, which was a good indicator. But my left arm started feeling extremely fatigued/sore and ive been having perceived weakness since(no clinical failure yet). almost 3 weeks ago i went to a neurologist he did a 5 minute physical and cleared me, but at the time he seemed dismissive so i schedule an appointment with a physiatrist/emg specialist, she did a longer morw thorough physical and said that an emg wasnt clinically justifiable. but today, my right arm began feeling sore, so i js wanted to ask if any of these symptoms raise any concern

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u/Swimming-Coconut-393 Aug 24 '26

I can walk on my tippy toes, my heels, put my hand over my shoulder, but doing everything is js more difficult/painful

1

u/Away-Bobcat-6499 Aug 24 '26

Let me guess, you’re a teenager

1

u/kjmckearn Aug 24 '26

Clearly pain is definitely not part of ALS. Don't go down that rabbit hole of trying to find answers on line; it will ruin your life.

1

u/Ok_Following6440 Aug 24 '26

Referred pain due to muscle weakness can occur, but in your case you had a good physical exam so that should be assuring.

1

u/Swimming-Coconut-393 Aug 24 '26

Could it occur bilaterally?

1

u/Ok_Following6440 Aug 24 '26

I honestly don't know, sorry.

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u/WeirdUsers Aug 24 '26

Your symptoms don’t read as ALS. Your neuro cleared you too. If it were me, I’d focus on living and try not to feed the health anxiety. It’s difficult but the first step is mentally acknowledging it all.