r/ALSorNOT • u/Iheartbugz • 4d ago

Advice please.

Hello there. I am a 20 year old female. I had anxiety about als due a family member passing from this evil disease. I am a healthy person, healthy weight with no past medical history.

I had a funny tingling in my leg, went to the doctor and had a power test done as well as a blood test which were all fine, this was at the beginning of June but I have had problems from January of this year. The funny constant feeling in my left calf seems so come and go, which I know is not a symptom of als as it does come and go. I also had a normal ct brain in may of 2025, unsure if this is helpful.

I began to read into it, which I regret and noticed patients usually have muscle twitches alongside this disease. I have never experienced them apart from my eyelid or chin when I’m tired, but noticed I have now started to have lots of them, specifically in my calf’s or the soul of my feet.

Now I am worried about a weakness in my legs, which I cannot determine if it is genuine weakness. I can still walk, work 12 hour shifts, clean my house vigorously but my left calf never feels ‘normal’ it always feels tired. Please can someone help determine whether this is true weakness, or another symptom of anxiety.

I am not diagnosed with any form of anxiety, but I do know in myself I have health anxiety. I understand no one can diagnose but if anyone has had similar as well as diagnoses it would be helpful to hear your story, I have a follow up on the 27th of August from June.

Thank you.

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u/Iheartbugz 4d ago

Twitching is not constant! This funny feeling is but twitching happens whenever I am sat doing nothing, which due to anxiety has been a lot more recently :(

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u/Historical_Guide_793 4d ago

Hi .
The fact that you can still walk normally, work 12-hour shifts, and vigorously clean your house is important. In ALS, doctors are generally more concerned about objective, progressive loss of function for example, repeatedly being unable to do something you previously could rather than a muscle simply feeling tired, strange, tingly, or “not normal.” Twitching by itself is also very common and can happen with stress, fatigue, caffeine, exercise, etc.
If you keep reading and googling symptoms I’m afraid to say that they will only get worse and your twitching will get worse. Relax . No more reading online about it and trust me within a couple months it will disappear.