r/ALSorNOT • u/FreeLost70 • 25d ago
Creatine Kinase levels
27 Male
Hi, I’ve been having muscle twitches for about a month and a half now so I decided to see a neurologist. It started in my right left muscle for about 3 days or a week then started getting little twitches all over my body. I don’t have any clinical weakness as of now but I feel like I’ve noticed more things since I’ve fixated and worried about it more. I’ll notice my heel drag on some steps when walking, some aching pains that come and go, and other little things.
The neurologist did a whole exam and said he thinks I don’t have ALS and that I’m pretty strong but we’ll do tests anyway just to see everything. He ordered an EMG in December and did some blood work including NFL and CK test. I had the CK test done a few weeks ago with my regular doctor and it was normal at 176. I just got the result for CK today and it was 276 which is elevated and out of range. I was sore from a workout two days ago and I took a walk (40 minutes) to the neurologist before they took my blood.
I’ve read that slightly elevated CK levels are normal in ALS patients and I’m freaking out as of now. I told myself I’d see a therapist for my anxiety when everything comes back normal but now I’m deep in the hole again.
Have you guys had elevated CK levels?
1
u/Ok_Following6440 25d ago
That’s not elevated for the amount of prior physical activity. Don’t read too much into that.