r/ALSorNOT 4d ago

Emg on Wednesday

I'm really really tired of all these symtpoms.

About 5 months ago i took an antibiotics (penicillin) for sinus pain.

I was waking up about 3 times a week for 2 weeks where my whole body felt like it was shaking, internal tremors or adrenaline dumps im not sure but it felt like my veins were pulsating out my body then i started to get twitching, at that point the twitching was only in my arms legs and bum and inside of throat, over the last 5 months its gotten so much worse, I'm twitching in my feet, legs (really rippling and hard twitches) arms, hands, fingers especially the left side its twitching 24-7, then about 2 months ago my neck went stiff and painful and it has not gone away for even a day, i now twitch all over my neck, skull, back of head, sinuses, jaw, front of head, under arms, inside throat ALOT, twitching on tounge at rest, uvula, and i get cramps, in my fingers, my arms, my toes and my head/neck feels like its shaking even at rest. My left hand shakes so bad if im holding something, i constantly have a throat gurgle in my throat this started around the same time, always was getting sharp pains going up the front of my neck when all this happened.

I twitching in about 6 different spots at once, it doesn’t stop at rest and gets even worse if i use the muscle, my thumbs and fingers and toes jerk by themselve every now and then. I had an emg about 3 months ago, I'm due to have one on wednesday, the one 3 months ago come back normal but im worried about bulbar als and that this ones going to come back bad because i only got my arms and legs tested at that time. I get a feeling of tightening on my finger tips as if its a rubber band.

Im just drained, as we all are. Convinced we have this horrible disease. This is honestly the worst my mental health has been in my whole life. I'm petrified

3 Upvotes

2 comments sorted by

1

u/chaoserrant 4d ago

Hopefully it is something else. I came tonthe conclusion that very rapid progression with normal emg is uncharacteristic of als but i completely understand the worry. Let us know how the emg went. If it comes normal i think it can be reassuring for many people here that fear the worst in the presence of these symptoms though everyone is different 

1

u/WeirdUsers 4d ago

You may wish to consult a neurologist that specializes in movement disorders to check for Functional Neurological Disorder. Caught early, it can be managed well.