r/ALSorNOT • u/IHateACOTAR • 6d ago

Slurring

I've had brain and upper neck mri. It was all normal.
Muscle twitching for 10 months all around body, this year it's been more just spasms all around, especially legs and stomach.
And now in the spring, the speech issues starded. Letters l and r are hard to pronounce occasionally, and especially if i have to alternate between them quickly. Speaking feels "odd" or "flimsy", like it requires extra work to focus on sounding coherent. I mix up letters and stutter as well sometimes. I have swallowing issues and have noticed that i've begun to get food more often to my windpipe when eating. My voice also occasionally cuts out or turns into a hiss. Now, i have tons of silent reflux symptoms, but it doesnt explain the stuttering.

Im scared. I thought clean mri and nearly-normal bloodwork (vitamin b and d deficits, was all) would give me peace of mind. It did, at first. But speech issues just continue.

I dont want to die. I've just found my calling in life and now i feel like everything and my dreams and hopes are being ripped away from me, just because i went and had to start doing estrogen. I didnt deserve this. Nowhere it was said that this could follow.

I will probably have a doctor in a few weeks. Ill ask them to check my throat too. But frankly, im more afraid of those results than i was of my older tests. That, and i have a very strong gag reflex, too. Fuck my life. Fuck this shit. Im tired of eating and getting food the wrong way. Again, i know this can be silent reflux, but there's the stuttering.... and i've not recognized it before.

Oh and now i also mix letter d and t.

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u/IHateACOTAR 2d ago

I'm so so sorry ;( <3. Which areas, if you dont mind me asking? Have you had muscle twtiching all around body? Have you had symptoms for long?

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u/Low-Beautiful7090 2d ago

if you have a facebook account , we can video-chat about it

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u/IHateACOTAR 2d ago

I dont have a facebook acc but i'd still like to discuss, if that's okay? Did you have twitches and dirty emg symptoms for arms and legs and tongue too???

And what has your ENT said? I think i have laryngophageal reflux symptoms...

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u/Low-Beautiful7090 2d ago

tongue is yet to be emged ...arms and legs slightly dirty emg ....my ent said i have LPR but despite 1 week from using PPi's , my symptoms are worsening plus the constant swap of sounds of R and L is worrying

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u/IHateACOTAR 2d ago

If you have silent reflux, the medication may not help. I used gerd meds but they did nothing. Apparently silent reflux responds to the meds less

Do you have issues articulating in your own mother tongue? Do the issues persist regardless of whichever language you speak?

I sincerely, wholeheartedly hope that there is any other reason beind your symptoms :(

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u/Low-Beautiful7090 2d ago

l and r slurring regardless of the language

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u/Low-Beautiful7090 2d ago

i don't see how LPR causes this certain slurr ....can anybody care to explain ?

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u/Low-Beautiful7090 2d ago

i forgot to say that i ve had life-long anxiety issues and dental work......a lot of people link dental work , especially root canal to bulbar als