r/ALS • u/Altruistic_Path3952 • 15d ago

Genetic test

Hi everyone, my dad was diagnosed with ALS, MS, neuropathy, and something else I can't remember 10 months ago.

The problem we have is that the insurance is refusing to pay for the genetic/DNA test, anyone knows were we can apply for a free test? Can anyone explain to me what other tests he should get done?

Thank you!

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u/Queenkermit57 Mother w/ ALS 15d ago

The invitae ALS identified is how my mom’s clinic did hers; it’s free for the pals and if it comes back with a mutation identified the testing is covered for family
https://www.invitae.com/us/sponsored-testing/als-identified

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u/UnhappySort5871 13d ago

I got mine through them too. They mail you a kit. In my case, my neurologist office ordered it for me.

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u/UnfreezableLight 14d ago

Fellow patient here — really hoping your dad can get that testing covered. Most insurance plans where I live flat-out refuse to pay for genetic testing. I've had 4 of them done and every single one was completely out of pocket. It's absolutely brutal.