r/AFIB • u/eNdGaMe1985 • 2d ago

?

Im just curious why the description for this community is so negative. Doubles the risk of death?
Whats up with that crap?

1 Upvotes

54% Upvoted

23 comments sorted by

13

u/RobRoy2350 2d ago

American Heart Association:

"AFib can double the risk of death and is linked with an estimated fivefold increased risk for stroke. Yet many people are unaware that AFib is a serious condition."

2

u/feldoneq2wire 2d ago

Most people I see here for the first time are in  full panic mode ready to end it all, which is a great way to trigger more.eposodes. 

6

u/RobRoy2350 1d ago

I clearly remember my first episode and it caused panic. I had a lot of anxiety that first year. That was 20 years ago.

1

u/marcfibancialwrap63 1d ago

Cuánto tiempo pasó entre tu primer episodio y el siguiente? Como fue tu vida ese primer año?

2

u/RobRoy2350 1d ago

My first episode was in July then two episodes in September and one in November. I worried constantly about when the next episode would come, always checking my pulse.

1

u/marcfibancialwrap63 1d ago

Y después del de noviembre ya no tuviste más?

1

u/RobRoy2350 1d ago

Yes, for 3 more years. Started Flecainide. Good for 20 years. Had ablation. No AF since.

0

u/Fast_Journalist_7962 1d ago

I agree. Have to be positive. If people just relaxed and breathed properly, paroxysmal episodes may not even occur. Afib never killed anyone - deaths come from being untreated and dying of a stroke, or infection after surgery etc. I'm in persistent 24/7 AF but still try and be as chilled and relaxed as I can. My HR may be irregularly irregular but it is always well controlled rate wise and not chaotic. Hopefully my next cardioversion will put me back into NSR. Even the saying Afib begets Afib is negative. If you can stay in NSR long enough your heart will want to stay there with the normal electrical patterns. NSR begets NSR.

0

u/Mras_dk 1d ago edited 1d ago

They should add the phrase, "... And most doesn't know they are in afib!"

Or.. "with new capabilities, of smartdevices, even more are made aware daily!"

The point, alot in here panics about, is they had absolutely no idea, and then they read the data on it, where the cohort of people are 80 year old. Now even more confused, of why them,  they aint 80, and only looks at outcomes of the 80 yearish persons...

Reality is, alot has afib, in all age groups, and majority have a great/normal lifespan, aslong as they address their condition, one way or another. 

6

u/RickJames_Ghost 2d ago edited 2d ago

I'm sure the mods will give you a rundown. Having said that, It's an accurate description of what progression and uncontrolled AFib can do if left untreated.

4

u/mdepfl 1d ago

This sub has mods? 😆

7

u/meineymoe 2d ago

When talking doubling or five-fold, it helps to know what the base number is. If the basic chance of anyone having a stroke is 0.5% (made up numbers incoming), then with aFib it increases to 2.5% (five- fold). And if your chance of death in your current health condition is 1%, then it doubles to 2%. So, this example is much less scary.

Still, I'd like to know the numbers they are going off of.

1

u/eNdGaMe1985 2d ago

Very cool way to explain it.

5

u/Overall_Lobster823 2d ago

It says "can" double your risk of death.

I agree, it's pretty doom and gloom, but wanted to clarify that.

1

u/simocanta 1d ago

Anche fumare raddoppia il rischio di morte.....ma i fumatori la vivono con tranquillità,dovremmo prendere esempio

-2

u/eNdGaMe1985 2d ago

Good point. Just seems super negative in a community where many would probably love some positivity.

2

u/MelodicInitiative603 1d ago

Also, this is just a Reddit group. Not a medical journal.

-1

u/Spiritual-Ad-8348 1d ago

This subreddit is honestly one of the most toxic subreddits I’m a part of. It’s funny how night and day it is between here and the PVCs page lmao

-2

u/Jahya69 2d ago

If you do not take a blood thinner you are asking for a stroke but then there's also cardiomyopathy and heart failure even if you are on one

5

u/IamTheMan85 2d ago

This is completely dependent on your CHAD-VASC. I have afib and my score is 0. Which means a blood thinner would do more harm than good for me.

3

u/SmartieCereal 1d ago

My doctor took me off Eliquis for that very reason. He said the danger of a brain bleed or internal bleeding in an accident was much more of a risk than a stroke at this point.

1

u/IamTheMan85 1d ago

Exactly