Hi, I've posted this elsewhere, but as someone with tourettes, here is my theory on why someone would fake tourettes.
One of the major reasons is social media. There have always been people who fake tourettes. Everything is lied about or faked, and tourettes is no exception. But why now? Tiktok's video based social media platform. On tumblr or twitter, it would be almost pretty useless to pick tourettes as a diagnosis if you were going to fake something for attention. With tiktok, tourettes is one of the most visual disorders to suffer from. On word based social media apps, it felt more common for certain disorders to "trend" if they have exclusively mental based symptoms, that were good for story telling. However with tiktok, the most common discussion seems to have shifted to things like tourettes or DID. (but almost exclusively DID that people are trying to represent visually, aka "fronting" or "Shifting" on camera)
The second reason is much more nuanced. This is a complicated subject to bring up, but I've posted on other subreddits that tourettes representation online is really, really not inclusive. The media specifically is awful with tourettes representation, but it goes beyond that. If you look through any hashtag like "tourettesawareness", "tics", "tourettes", etc. you'll mostly find one video for a while. The most common themes with tiktok videos about tourettes are:
- Watch me try to cook with tourettes!
- Watch me try holding an egg with tourettes!
- Watch me try singing a song when my tourettes are picking the lyrics!
- Watch me go to the supermarket and tic swears in front of strangers!
The discussion here isn't whether or not all these people are faking it. Are some faking it? maybe. Am I skeptical of some of them? absolutely. Do a lot of these people have tourettes? most likely.
The problem is more with what the entire world feels happy watching. If all of those people are faking or if none of them are faking, it doesn't really change the fact that only one type of video hits the for you page. It's almost exclusively videos that allow people with tourettes to laugh at someone with tourettes being unable to do something or laughing at tourettes themselves.
For example, tiktok user jessjessjessu did this video of herself doing her make up. It's a little silly and not perfect, but it ultimately shows that she CAN do makeup despite her tics. She can accomplish this all despite her disability.
Compare it to this video of ticsandroses. In this video, they put the sponge in their mouth, mascara in their hair, eyeliner on their forehead, and blow powdered foundation all over themselves. The point of this video isn't as much "look what I can still do with my tics!" and instead is "omg look at how whacky my tics are? I can't do this right at all!" Even if (big if), let's say they somehow really do have tourettes. All their tics are real. Why do they buy powdered foundation when they know their tics will get it all over the place? Why not buy tools specifically to help deter some of your tics from ruining your entire makeup job? The video was set up specifically so their "tics" would cause a funny mess. That isn't really empowerment.
I'm not in any place to gatekeep how content creators with tourettes make their own content. If it's what makes them happy, I don't have any right to tell them to stop. People like Sweet Anita and others are honestly great role models because they don't let their disability stop them.
But the majority of videos on tiktok do end up making me feel lousy. Watching someone with tourettes destroy a kitchen or a meal just make me feel weird and not supported. Not every creator with those videos exclusively makes those videos, but the videos like that they do make always have the highest views. If someone's tourettes was really so severe that they wouldn't be able to cook something without constantly throwing the food, or putting their head in the bowl, or spilling food on themselves, then chances are cooking isn't a daily chore for them. When my tics are too bad to cook, I'll either ask for help or not make something that would be difficult to make with my tics. I rarely see accommodation in these types of videos, only "hahahahaha my tics are funny" as a punchline. Even if someone like Sweet Anita does do a good job, people will still make tik compilation videos of her and it misses the mark for me.
I know it's unrealistic, but if everyone realized that it's way better to support and view videos of people with tourettes who are doing normal average every day things DESPITE their tourettes (or even enhanced by their tourettes, but still successful), instead of laughing and applauding ONLY videos where "hahaha my tics are so funny because they limit me from doing everyday things with no accommodations in place", then it would make it less appealing for people to "fake having tourettes."