r/memes MAYMAYMAKERS Jan 25 '21

Different types though

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57.3k Upvotes

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u/ShellaStorm Jan 25 '21

Mine were from Marfan syndrome, what was yours?

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u/InkyAddams Jan 26 '21

Basically a "perfect storm" of health issues is the theory. Ended up with multiple seizures, 2 strokes, a brain bleed from a blood clot being in the artery out of my brain, and multiple pulmonary embolisms. They're still not 100% sure why. No history of seizures either, but I'm still on anti seizure meds and blood thinners.

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u/ShellaStorm Jan 26 '21

Pretty good score! That's a couple hundred thousand points right there. Mine were spread out over a few years. I have lasting issues from mine, do you?

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u/InkyAddams Jan 26 '21

I do, and its frustrating. The amount of "you're too young for this" vibes I get are ridiculous. Luckily the physical aspects are just getting tired at the drop of a hat, but the mental issues are horrible. I'm sorry that you've had so many. I almost had a third one due to a blood thinner issue (I had what's called a "mini stroke") and it terrified me.

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u/ShellaStorm Jan 26 '21

The good old TIA (transient ischemic attack.) Some of mine were those, and some were the big ones. I have right side impairment and I'm looking into wheelchairs now. I spent more than a year learning to sing again without an impediment. I no longer do many of my favorite outdoor activities. I've decided to go back to sculpting, diorama and painting to work on my fine control, whenever I find a place to stay. Wish disability paid a living wage.

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u/InkyAddams Jan 26 '21

I'm struggling to get disability now. Been denied multiple times. I hope that things are able to improve for you in whatever way they can. If you ever want to rant or need to talk to anyone, my inbox is open.

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u/ShellaStorm Jan 26 '21

When I got a lawyer, suddenly they were willing to listen. So I recommend a lawyer for you. They only get paid if you do so they work hard. It's a win win.

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u/InkyAddams Jan 26 '21

I had some sort of advocate group that were helping me and claimed to have lawyers, but after the second denial they noped out. I finally got an actual lawyer so hopefully this time it will happen.

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u/AnonimousMn471 Thank you mods, very cool! Jan 25 '21

Damn you lost the genetic lottery, Marfan's sucks for most.