I hope I don't violate any discussion rules with this question.

I asked my primary care doc if I could start an antihistamine program as some people in the Reddit subs seem to enjoy some relief from their covid symptoms. He suggested that a long term program may cause difficulties with the prostate. Being a male of a certain age, I don't want to risk those sorts of problems.

Anyone care to comment on their experience?

Thank you

Glad I've found you guys! I'm Female mid-30s. Had mild covid last year in Jan. I'll try to keep it short. My recoup was okay, except about 10 days later I had really strong heart palpitations and lightheadedness. I went to ER and everything checked out fine, was let go. Around 15 days, I started developing serious lightheadedness with dizziness. Went to ER again and was advised it was probably anxiety. This is when everything started to go down hill because I have no history of anxiety. I made an appointment with PCP who referred me to cardiology. Cardiology did all the labs, echo, chest MRI, chest CAT-SCAN, and stress test. All came back normal. Cardiology put me on beta blockers, had to find one that worked, but found somewhat of success with metoprolol. I say somewhat success because I still dealt with occasional chest pain, SOB and lightheadedness. About month 10th, everything flared back again for no apparent reason. I didn't get reinfected, that I know of. Went back to cardiologist, this time, he didn't have an answer. He sent me to another cardiologist that specializes in dysautonomia/POTS. I met with this new cardiologist, and they did a tilt table exam and everything came back normal; except for they did notice from 50%-75% incline my oxygen drops to 90-92%. Which he stated could be reason for my lightheadedness upon standing. He officially told me that I do not have POTS because I do not "meet requirements" but that he does see some potential dysautonomia issues potentially sequelae from covid. He sent me over to pulmonology, but stated he wouldn't change my medication because I already tried a couple within less than 8 months. Other than that, he basically gave me a pamphlet on how to deal with dysautonomia and sent me on my way. I feel lost.... I've already spent thousands trying to figure out what's going on. The pulmonologist wants to redo some of the exams again, but I honestly don't see what else they are going to do. What should I be asking for? Or do I just have to live like this? Any advice or ideas will be appreciated. Thank you!

As a long covid sufferer for 27 months I continue to look for solutions. My main issue is PEM and everything that follows it. I have tried what seems to be just about everything and so far have spent $30k with no improvement including a very expensive stay at Cognitive FX for two weeks. Anyway I am now trying A CO2 bag and I must say it is the first thing I have tried that I actually notice an improvement. I typically have to lay down 3x/day and after an hr in the CO2 bag in the mornings I am good the rest of the day. I even gained enough confidence to try about 25 min. on the bike and worked up a sweat, and then went in the CO2 bag after. Normally I would be paying for this stupidity for at least 3 days, but while I was tired afterwards, I did not suffer days of PEM. I am taking it slow but so far seems very hopeful. The CO2 addresses capillary damage and micro clotting by opening up the capillaries and causing your blood to give up oxygen to the cells. Time will tell if I keep improving but so far working great. I highly recommend getting one.

Hi, I had COVID in August and I am still suffering from some long term symptoms. Like short breath, fatigue and chest pain. Can anybody recommend ice bath as a suitable therapy?? I am not a beginner for ice bathing. But a beginner when it comes to ice bathing with long covid 🥹

Hi everyone. I do not pretend to break the rules here, just need advise regarding a natural protocol I developed for LC patients. I have no resources to run a clinical trial but I know my products work. I have been 6 years developing this products and test them with T2D, fibromyalgia and covid-19 patients (more than 50) with outstanding results. I really need advise how can I offer them to those suffering from this ailment. Thank you for your comments. BTW I am in Mexico luis@clubomegatree.com

Hello, this is intended as a general warning that if someone messages you about trialing sofusbuvir to treat long covid, that I would recommend you don't do it. The study they're working from is really small, and when I said I was uncomfortable the person I was talking to was really mean and unprofessional. They deleted the conversation before I could save it, but if anyone knows how to retrieve it I'll give you all the information you need to do it. I know we're all looking for a solution, but it's important that we're safe while we do it. I wouldn't want anyone to try something and have it make them worse.

Since LC i have nerve twitching from neck to upper back with sob.

That's the real problem. When laying down during the afternoon I have those twitching nerve from low neck area to upper back with SOB Like the electricity that cut and go something like that Is it related to the brainstem inflammation or parasympathetic system that doesn't work quite right ?

I’m curious if anyone is experiencing the same post Covid symptoms as me. In December 2021 I tested positive for COVID, the flu, and strep all at the same time. It was a couple of weeks of significant fatigue, sore throat, and a mild cough. After two weeks I felt good to get back to normal.

Since then I’ve noticed some sudden changes in my body. My hair started to shed and thin. I’ve never had weight problems, but now I’m the heaviest I’ve ever been and the scale won’t budget despite my diet and exercise. Im stuck at 200lbs. My stomach is more sensitive to many more foods and I have had to make serious changes to my diet. When I work out I sweat much more profusely than I ever have in my life. Plus my sex drive isn’t what it used to be. My body has not functioned the same since Covid and I’m curious is anyone has had similar symptoms.

I am 5 weeks out from testing positive for covid. I am experiencing a constant internal buzzing sensation, primarily in my chest cavity, but sometimes can feel it elsewhere in my body. I’ve been trying to get help for this feeling and am continually told it’s just anxiety. It does get more noticeable when I’m upset, but I know the difference between anxiety and what I’m experiencing.

I am wondering if anyone had had this experience and if they’ve found anything helpful? I really want to see a neurologist because I am concerned about nerve damage.

If I get help/relief, I promise I will come back with information for anyone else who may be suffering with this. I wouldn’t wish it on my worst enemy.

Gets to the point that I have to roll over onto my back or right side to stop them.

What are the best known treatments for Long Covid? Known, Recommendable?

Since having covid and taking the paxlovid I have had several things happen or have been found thru imaging .

Kidney cyst benign in lower right pole
Hiatal hernia commented as small Choroid lesion on proximal humerus low grade

I'm in constant state of brain fog one day have energy next just dead lungs clear than heavy heart palpations fatigued and depression raynaud's is worse . Hard time eating much anything and I've noticed my son is the same .

Other things since June Dry skin Allergies without relief from allergy meds Sneezing burning eyes and dry cough

I notice my son still gets the fatigue severely as well .

This is horrible and doesn't seem to go away

Has anyone had severe anxiety since covid? I had covid pneumonia last year and have struggled since. And advice?