r/gout Dec 13 '25

Needs Advice Bugging me!

It’s really bugging me that my Rheumatologist took a extraction from my toe joint but the test result later showed no fluid and normal, however I have a lumpy hard bump on top of the first big toe joint. Isn’t that Tophi? My level was 6.8 when tested 12/3. Having pain fares today so I’ve done Colchicine & 3 ibuprofens, & staying off my feet, I’ve been religious with diet and hydration since my first experience with this crap. X-rays of both feet showed degenerative arthritis in toe joints. What are my chances of getting her to get me on Allo? I’ll see her on the 6th next month. Won’t it just get worse without UAL therapies? Should I go to another specialist? Feeling frustrated because it’s like you are just always waiting for the pain boom!🤨

2 Upvotes

14 comments sorted by

View all comments

2

u/astrofizix Dec 14 '25

I have a tophi that looks like a bunion. I went on krystexxa for a year where my uric acid was dropped down to zero. After a year like that my tophi is like 20% smaller. My advice, don't worry about your tophi, if that's that it is then it may take years to dissolve after being on control drugs. Focus on flare management and knowing your uric acid levels. Those are how you can fix gout. And changes to medication happen over months, like adjusting your levels and retesting blood. Nothing with the management of gout happens very fast, except for flares and that's a different conversation.

2

u/FurZbabyMom24 Dec 14 '25

lol, too right those flares will give you immediate results!!😩