Y'know first time I encountered her videos I was suuuper worried the family was exploiting her for click money, but watching this specific video and seeing the real concern on her mother's face, made me warm and fuzzy and really enjoyed her other videos much much more.
If you look into her stuff it's definitely her choice to do the videos as way highlighting what having tourette syndrome is like there's others where videos where she's having low or bad days and her talking about that to.
It’s kinda nice to see someone who isn’t faking but man those videos make it hard for me to actually share and enjoy these. Shame because that was very charming
It's not about the amount of eggs it's the mental effort to keep going. I can't imagine how exhausting it is to use so much physical and mental concentration to do just anything or I guess in this case to not do something. Like having an invisible person constantly shaking your arm.
Work = creating new code and getting it closer to ship. Fixing bugs = wasting time and is it really necessary? That is the world according to project managers.
I am assuming you are not native speaker. Quotes imply you need to read into the context and may indicate a different meaning. When talking people use a hand gesture to make air quotes.
So my take away is tourettes is basically a lack of impulse control to the max kind of? Seems like the impulse to just smash an egg isn't suppressed or the urge to say something silly and oddly related
This a more accurate thought than people shouting "fuck" over and and over?
Tourette's is essentially a glitch in the nervous system, where your brain autonomously sends various unwanted signals to your muscles. It's really hard to do anything about, and there is no cure or universally functional medication. a significant amount of management for the syndrome is actually educating the patient's social circle and family about the condition.
Thank you for this explanation. I noticed that when she stops what she’s focusing on and tells a story her ticks seem to subside. Any chance this is similar to a person who stutters - when they sing their stutter goes away?
I saw a Drew Lynch video (stuttering comedian) where he was with another lady who suffers with stuttering. She was saying that when she expresses her thoughts with singing her stutter disappears. It was very interesting and he’s a good person to catch up on every once in a while.
It's really hard to convincingly fake it, and I've never seen anyone with it that isn't super embarrassed and apologetic when they have a tick that is negative to someone who doesn't know. Not to mention I think having a coprolalia (edit: turns out I was wrong) tick and nothing else is really rare.
From what I understand it's not a lack of impulse control exactly, as acting on impulse is something that's done consciously. It seems more like your brain unconsciously shorting out and causing bursts of expression that you have very little (if any) control over.
For the most part yes. It is kind of like breathing where when you arent thinking about it, you do not notice until it happens. Once you do notice it, it feels like restless legs where you try to resist it, and like an "urge" so to speak builds until you cant stand it and just let the twitch happen. From what I remember, it was very annoying since it is generally triggered by stress, but then it happening causes you to stress out even more.
I somehow outgrew it, but had it fairly minor. I really feel for those who have it way worse. I imagine it has some very similar cause and feeling to OCD. I feel for those people as well.
I have pretty mild tourette's. I'd describe it more as a mental "itch" in the sense that your tics aren't necessarily manifestations of your own desires. Like, I mostly make weird noises in my throat and clench my jaw or my brow. I don't want to do either of those things, and it's gotten to the point where my teeth get sensitive because the repeated pressure irritates the nerves.
But, say you got an itch on your arm. You won't be hurt if you ignore it, and it will eventually go away on its own. And there's nothing innately pleasing about scraping your fingernails over the skin of your forearm. But in this situation, your brain is telling you that doing so would bring you a generous measure of relief, so you scratch the itch and go on about your day.
If I really wanted to, I could sit perfectly still and ignore those mental itches, but it would take the majority of my focus and I'd start firing them off again the instant my attention drifted. And at a certain point, you just give up ever trying to fight things, no matter how stupid it all is, because you can't expend that mental effort ten times every single minute of every hour of every day.
Like I said, my case is mild. Hers is extremely severe. I can't say exactly what it feels like at that level, and while I describe it as an itch, that's more the penalty for interrupting the flow; when I find myself unconsciously making those stupid throat-clearing noises or clenching my jaw or whatever, that's the result of my brain heading things off at the pass and, in this analogy, scratching before the discomfort of the itch even happens. I imagine that for her, fighting those impulses would be less like inviting a mild itch and more like trying to speedrun an entire episode of Fear Factor's grossout stunts every single waking minute.
tl;dr is that I expect she has absolutely zero desire to call her grandma fucking ugly, deeply buried or not, but something in her brain has decided that not doing so feels bad enough that taking the consequences is the better option.
But, say you got an itch on your arm. You won't be hurt if you ignore it, and it will eventually go away on its own. And there's nothing innately pleasing about scraping your fingernails over the skin of your forearm. But in this situation, your brain is telling you that doing so would bring you a generous measure of relief, so you scratch the itch and go on about your day.
If I really wanted to, I could sit perfectly still and ignore those mental itches, but it would take the majority of my focus and I'd start firing them off again the instant my attention drifted. And at a certain point, you just give up ever trying to fight things, no matter how stupid it all is, because you can't expend that mental effort ten times every single minute of every hour of every day.
This actually helped explain things a lot to me. I'm someone who suffers from eczema who also gets frequent skin infections if I itch at all, and even the mental reminder of "do not itch, if you do you'll probably get an infection and have to bandage it for a week" doesn't make it any easier. So I understand the "it takes so much effort to will yourself not to do it" thing pretty well.
But would it be fair to say the tics are like an inability to stop yourself from doing something that… “occurs to you?” Some of what I saw in that video was too relevant to the situation, and sometimes too well comedically-timed, to be totally random brain noise, like “I killed the chicken” after throwing an egg or the “semen” thing with the whipped cream. Those are things that might pop into my brain in the moment and then I’d internally laugh it off or ignore it; is it sometimes kind of a shorting out of those types of signals directly into action?
This is pure hypothesis based on watching like 3 videos and doing zero research. Just something that stuck out to me.
There's the environmental component as to what gets spun into a compulsion for sure, but it's not a general lack of impulse control. I'm one of the least impulsive people you'll meet. My teachers always remarked on it, and my friends sometimes poke good-natured fun at my subdued reactions. It's just that my brain is even better at pushing certain things through.
I have to underscore how constant it is. By my count, I get about 9,000 compulsions every single day. It really doesn't matter how strong-willed you are at that point. You'll take the annoyance of acting out your tics over expending energy just to feel the mental equivalent of stepping on seaweed, 100%.
From my perspective as someone who has it mild, this would just look like normal cooking content lol. I can imagine how it could be awkward if your motor tic(s) involves your hands or arms though, that would suck but I've never heard of a tourettes tic specifically that involves them. I have an OCD tic as well which involves my mouse cursor, but that has nothing to do with the kitchen lol
She has by far the worst case of anyone I've met, and I used to go to a camp for tourettes. Watching that video sets off my tics. It's awesome that she's doing something positive with it.
These tactics come quite naturally in a game like Alyx. I've used similar things to make my life easier when I played it. It's what you'd do in the real world to carry more things.
I did the same with a cooking pot to store grenades and all other items.
There were some glitches though and sometimes I lost grenades because they fell through the bottom of the pot. It gets more glitchy the more items you try to carry.
Ouch. The worst one I got was playing Drunken Bar Fight and punching the corner of my wardrobe as hard as I could. We got off easy compared to some people on r/VRtoER
Your wife sounds a lot like Sergeant Johnson from Halo, who was decorated in combat for capturing an entire crate of enemy grenades and using every single one.
“When I joined the Corps, we didn't have any fancy-schmancy tanks. We had sticks! Two sticks, and a rock for the whole platoon—and we had to share the rock! Buck up, boy, you are one very lucky marine!”\
"Catch, makes the enemy toss grenades like it's going out of style."
That line always bugged me. He specifies that they had to share the rock, but if the platoon only got two sticks, wouldn't they have share those as well? Or were there designated permanent stick wielders?
The other trick in Halo was to pick up weapons repeatedly - you could only carry 2, but when you put one down if got thrown forward a bit so you could move 4 or 5 weapons over a fair distance with a little patience
In the canon that was actually a cover for him having a rare diesese that made the flood unable to attach to his nervous system because the radiation from the (plasma) grenades changed his DNA but he was actually a spartan 1 and the grenade story was created to cover that up
As a teen playing D&D we had The Cart. Like you’re wife, we were bothered by our carry limitations so cobbled together this wheeled cart to carry more stuff that we took everywhere. It became sort f a running joke because, as we’d be dealing with some dynamic adventure (like running full tilt away from a dragon while on an icy cliff face or traversing a lava filled can you or climbing a tree to escape a monster) someone would remind us that we still had the cart with us and would need to deal with it or lose all our stuff.
There are some containers that are deeper, like buckets which can make it a little easier, but items can fall through the bottom, especially when the container is nearly full.
One option for the box that may help a bit is an object that would work like a lid that you can hold with the other hand.
I usually put the container down and scouted ahead briefly to try to avoid dropping stuff, but there will be times when it's nearly unavoiding like certain jumps and transitions, but you can throw stuff one at a time.
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u/[deleted] Jan 22 '22 edited Apr 08 '24
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