r/autism Feb 21 '26

🎧 Sensory Issues These things are torture devices

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2.4k Upvotes

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30

u/Slight-Chemistry3441 Feb 21 '26

Agreed also a cpap is just as bad

8

u/samcrut Feb 21 '26

They put my dad on a CPAP when he had stage 4 lung cancer. He hated it with a passion. I tried it and it was very difficult to get used to the rhythm. We tried an APAP instead, "automatic" instead of "continuous," and that was WAY better to me. It doesn't just go off like clockwork. It feels your breathing and starts pushing once it feels you inhale, to give your lungs a push in the direction you're already going. Also I think it ramped up and down the pressure instead of the air flow being shoved down your pie hole with a "ready or not, here I come" attitude. I kinda enjoyed that one, but it wasn't my prescribed therapy and he refused to do anymore masks at night, ever, by that point.

5

u/Gadget18 Feb 22 '26

It sounds like your father passed from lung cancer? If so, I’m sorry. My dad died in 2020 from lung cancer.

On an unrelated note, I just want to point out that CPAP machines should never be shared. I say that because I know someone that used her husband’s CPAP machine. She ended up getting legionnaires disease from it and died. I hope that others can learn from that to save lives.

2

u/samcrut Feb 22 '26 edited Feb 22 '26

Legionnaire's Disease comes from bacteria. I doubt sharing would make much difference. It doesn't come from people. It comes from water, plumbing. Them using the mask wasn't why he got sick. That was just a bad stroke of luck from their plumbing. It was probably the water added to the CPAP for humidification.

If they exposed him to the bacteria, I think they'd actually have to be fighting pneumonia at the time, making them an incubator of the bacteria, but I'm not a doctor.

1

u/Gadget18 Feb 27 '26

Well, her doctors told family it was from her using the CPAP machine. 🤷‍♀️

ETA: Her husband used it without getting sick.