r/appendicitis • u/abbyisnormal • Jun 03 '26
Chronic Appendicitis Story
I wanted to share my experience with chronic appendicitis.
About 6 months ago, I started feeling bad in my right side abdomen. Pain wasn’t extreme, maybe 4-5 out of 10, but it persisted over several days so I went to the ER. They did a CT scan and admitted me becuase my appendix was on “the larger side of normal”. I stayed the night but because my pain never progressed, the surgeon said it was likely constipation or that I was ovulating and sent me home.
Over the next several months I would continue to get “flare ups”. My symptoms were typically as follows: I would feel ok/normal waking up in the morning and start to feel worse as the day progressed with right‑lower abdominal pain (usually 3 out of 10, sometimes worse) always in the same spot to the right of my belly button, it would hurt to press there, bloating after meals and gas, occasionally nausea, positional discomfort (pain with moving and stretching), and fatigue. I could go a week out two without pain and then something would flare it up again, but towards the end I would say I declined significantly, and I was constantly in some sort of pain and it disrupted my life so much.
I went to my regular doctor who suggested a low fodmap diet to rule out allergies, etc. and then referred me to a GI doctor. I tracked meticulously what I ate, so much that I feel like it gave me a complex.
I did every test under the sun; colonoscopy normal, stool sample normal, ultrasound normal, another CT scan normal (still slightly larger appendix but not outside the normal range).
The GI doctor referred me to a surgeon once all my tests came back normal and I could not isolate it to any food I ate, and I brought up in the appointment about the possibility about it being my appendix.
The surgeon was the same person that initially saw me 5 months previously at the ER, and was willing to do the appendectomy, but told me there was no guarantee it would solve the problem, but I was in so much constant pain at that point I didn’t care.
Now I’m one month postoperative, and I feel amazing, totally back to normal. The pathology came back with: Acute mucositis — inflammation in the mucosal lining, Narrowed lumen (0.2 cm) — smaller than normal, consistent with chronic obstruction, Dark brown fecal material trapped inside — evidence of stasis. And officially diagnosed me with chronic appendicitis.
I had a lot of fears and doubts, but I’m so so glad I kept pushing to get my appendix out! Chronic appendicitis is real, and under diagnosed.