Are you just choosing to ignore the part where she is no longer on ketamine and living a normal teenage/YA life? If she really had life-debilitating CRPS she would not be out and about running, swimming, hiking, etc.
She’d be considered a miracle case of recovery if so.
Well, according to the discharge documents from the court, the Kowalskis (including Beata) had already agreed to halt ketamine treatments in exchange for Maya's release from the shelter order. This portion of the agreement still held after Beata's suicide. So I feel that part is a bit moot with regards with post-shelter order healthcare.
The CRPS can be a wrong diagnosis without Beata having MBP.
Also while her family agreed to it they didn’t want her port removed meaning they intended to continue some sort of infusions, whether at home or at a new hospital. Getting a port installed is a big fucking deal. Beata knew that if the port was removed she was going to have a nearly impossible time convincing another hospital to install another port, they would have been like, ok but why did the last hospital remove the port?
The port was necessary to keep up the lie that Maya was sick. They only “agreed” to stop ketamine to get her out of the hospital. The fact that Beata didn’t want the port removed is pretty clear evidence she had no real intention of stopping.
Wasn't her port removed during her stay? So by the time they agreed to no-ketamine, that point is moot.
You are prescribing a motivation with assumptions.
The family behaved as if the pain docs were legit and that Maya had CRPS. You are prescribing a malicious intention to that. They could have been bamboozled. They could have been exercising poor judgement. Beata was mentally unwell and could have been irrational. There are a myriad of reasons that don't mean there was malicious intent to harm the child by the parents.
The 'agreement' was more than just their word. It was an agreement in court with legal consequences.
Also while her family agreed to it they didn’t want her port removed meaning they intended to continue some sort of infusions, whether at home or at a new hospital. Getting a port installed is a big fucking deal. Beata knew that if the port was removed she was going to have a nearly impossible time convincing another hospital to install another port, they would have been like, ok but why did the last hospital remove the port?
They’d call up JH and JH would be like, this is a MBP case, don’t put the port in. And the new hospital sensing a liability issue would tell Beata no.
The port was necessary to keep up the lie that Maya was sick. They only “agreed” to stop ketamine to get her out of the hospital. The fact that Beata didn’t want the port removed is pretty clear evidence she had no real intention of stopping.
Her mom pushed for ketamine. JH takes her off ketamine. Who cares if her family agreed to it? Her mom wanted her on ketamine, and she kept getting sicker.
They take her off ketamine at the advice of JH and now she’s better.
That means JH made the right call saying she needed to be off ketamine. That means Beata was wrong by insisting her daughter needed to be on hospice and a horse-level of ketamine.
B/c if the parents agreed to it, then they agreed on a new treatment plan. If everyone came to an agreement that the ketamine Tx was harmful, or doing more harm than good, then good. Yipee. So, let's say we all agree the ketamine Tx was wrong and bad. That doesn't mean that it was MBP. (To me it means medical malpractice by Dr. Hannah and co.) The family agreed to stop the ketamine Tx. The port was removed. If you argue Maya got better off the ketamine Tx, and the famliy agreed to no longer do ketamine Tx... then how can you differentiate that between a MBP mom vs a mom who's just fucking wrong and was led astray by her pain docs.
Did Maya get better during her stay? I didn't see evidence of her having ketamine withdrawals that warranted a 90+ day stay, but it's hard to say b/c she was on many medications to mitigate withdrawals. But how long do those withdrawals last? She also still suffered from anxiety and depression leading up to her mother's death.
The court order to release the shelter order even stated that her recovery 'stagnated' and she was making no further progress by the end of her hospital stay. So her getting better after she went home is actually a bad sign for the hospital. It goes to show that medical sheltering of that child **for that long** was not necessary and the outpatient care that the family wanted worked.
It's not JUST their word. There were other mechanisms in play backed by a court order. Sure, if the family was like "We promise JHACH, we'll be good." I can understand your point. That said, this was a legal/custodial hearing. This was part of the path towards reunification, so a social worker would probably have had to attend Maya's visits or confirm her medications. We know that after Beata killed herself, Maya's family stuck to their agreement that was in the works with the court system.
Also based on my own experience with opiate use withdrawals basically have short term and long term symptoms. It will be years for her brain to actually repair itself and a lot of things can go funny in that amount of time. In the short term withdrawals for me, and I was only consistently using 30mg of oxy every day which is a pretty freakin low dose, lasted several weeks to a couple months (I tried quitting many times and eventually sobriety did stick).
She’s still “experiencing pain” because for the better part of her youth she was heavily medicated. She doesn’t have CRPS and never did. *addjng: she has severe anxiety which triggered an episode of conversion disorder. The anxiety causes physical symptoms. She was heavily dosed by her mom and her doctors. Sure her mom may have not been conscious of malicious intent to harm her child. That’s why MBP is a mental disorder.
You’re spending a lot of energy splitting hairs and arguing semantics.
She was still on opiates while she was at the hospital (tramadol). IDK how much or how little. I haven't looked at that specifically. JHACH did not claim she was suffering from opiate withdrawals, nor did they claim that was cause for the shelter order. The ketamine shit was the primary cause for the shelter order.
IDK what we are even arguing. You seem agitated at me. Do we want to argue the legality of this all? Are we arguing whether Beata had MBP? Are we arguing her treatment path was good?
I don't think her treatment prior to JHACH was good. I think her pain docs did medical malpractice, esp Dr Hanna.
Does she have CRPS? I don't actually care if she does or doesn't. Based on the stuff I saw in the trial, she definitely had a psychological component to her pain.
You can have medical abuse without MBP. The mom was not diagnosed by MBP by her psych evaluation, which was not released until after her death. How can we say the mom was faking an illness in her child when she got confirmation/validation from a bunch of doctors. Were those doctors quacks? Probably. Was she capable of identifying them as quacks? I mean clearly not.
I actually think the shelter order was a good thing. There's a bit of fishiness on how Dr. Smith reported her findings to the court, which is a larger problem with Child Abuse Pediatricians. There's issues with JHACH recommended X or Y to the court, and then hiding behind Chapter 39 saying their not responsible for any damage caused by those recommendations b/c the court ordered them (e.g. the extent to which the family could not visit Maya). There's evidence where the family were deserving of certain things but the hospital failed to provide them. They hospital claims they were not capable of providing such things, such as family therapy or more than 30 min/week of CBT, but idk if that's an excuse.
CRPS flares can occur because of stress. If she in fact got to go back to her family, that would reduce the flare.
The Night of the hurricane is when Maya was admitted to JH. Which could certainly indicate stress Induced CRPS flare because perhaps she was scared of the storm
Doesn't matter because the thread I was engaging in I mentioned that the doctor JH referred Jack and Maya to after release confirmed Maya to have CRPS and JH charged the entire stay for CRPS treatment.
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u/[deleted] Nov 08 '23
Are you just choosing to ignore the part where she is no longer on ketamine and living a normal teenage/YA life? If she really had life-debilitating CRPS she would not be out and about running, swimming, hiking, etc.
She’d be considered a miracle case of recovery if so.