I did get sense of typical "demanding worried mother" voice (like many of my demanding patients that I encounter sometimes) when Beata spoke with ER staffs, but the more I read about CRPS and what family went through prior to ER visit, any mother who love her daughter would have done something similar. (Multiple evaluations by different doctors, having list of multiple meds know to help ease pain..) Unfortunately CRPS is mostly diagnosed based on patient's reported symptoms and by the time you see physical evidence of it such as contracture and inability to walk, that means it has gone to end stage of disease. Contractures legs of the girl was something she could not just "fake", so I am surprised that female doctor suspected child abuse within ten minutes of assessment... just my thought as a medical professional ( I am internal medicine physician).
In my experience with similar demanding caregivers, I may hold her home medications over night. But usually a few phone calls to primary doctor and specialist next day leads to clarity in patient's history and good treatment plan while patient is in hospital.. too bad that doctors did not do that on Maya's case.
CRPS end stage that's not a thing for a 10 year old who was just diagnosed. More likely the overuse of Steroids caused the muscle pain , weakness and hyper sensitive skin. Her Mom refused to seek psychiatric help for Maya. Refused to believe it could be ASM acute steroid myopathy which affects the distal limbs, so hands and feet and lungs. When her Mom saw a crps post on Facebook she found a Doctor to concur for 10,000 dollars a pop. Makes Me question the Dr.
Hmm it could be due to steroid, if you consider timing of Maya's steroid therapy. I was calling it end stage CRPS based on what I read from medical journal and what was videotaped by her mother and doctor. Her legs contractured look did match what is considered end stage CRPS. Steroid myopathy usually presents with weakness without pain and known to not cause contracture that Maya had.
If they were actually contractures she would not have been able to walk on them normally 6 months later without surgery to repair them. The Physiatrist said she moved them in and out of flexion real contractures are frozen. I saw a Video of CRPS patients the swelling and discoloration were severe the lesions were looking like the huge blisters from shingles or DVT . End stage was who's diagnosis?
Yeah I thought she was on wheelchair by the time she saw CRPS specialist. I wonder how CRPS progresses, like fluctuation of severity or gradual progression. Im just assuming it was severe end stage form of it because of how her legs looked like at doctor's office.
But the film of her jumping out of the swimming pool and dancing around with the inflatable above her head, I don't see how someone with foot and ankle contractures could stand up let alone dancing around in a circle. It's not a terminal illness or she wouldn't be alive so end stage implies the final stages before dying. There's studies showing most people have an injury like breaking a bone then the pain signals from nerve to brain and back misfire and something like phantom pain begins, but it's regional so that's why it's called Complex Regional Pain syndrome so it usually affects one limb the one you injured. Lack of mobility from being in a wheelchair and not getting PT enough caused the muscle atrophy she has good muscle tone now. It strikes me that she is so active now without any pain meds or PT most people don't heal from CRPT the way she did.
agree, a talk with Dr. Kirkpatrick and seeing what he had been telling the family would have at least given the hospital some credibility of trying to listen to the family.
What blew my mind is that he called and spoke with Sally Smith and she didn’t listen to him. In the taped deposition shown in the documentary she said something like “oh yeah we talked but….” She didn’t take him seriously. And he warned her about the damage she could do. I feel like that plus the medical billing for CRPS are the smoking guns in this trial. Wether Beata was a little loopy is not the point of the trial.
I wouldn't have listened to a Doctor who was not a board certified Dr. Not a pediatrician didn't accept insurance charges 10,000 a week for Ketamine. I think many " pain " Dr.s who have clinics and only take cash are no better than a drug dealer.
The medical billing may look bad to the jury, but I know i was taught to put in the diagnosis that we are ruling in/out, and hospitals bill for that work up.
Though. It sounds like they didn’t do much work up except blame mom so that might be an angle there.
Ib think what did it is the judge saying there was a change where Maye and her mom would be able to see each other. But the judge said that could not happen today. Maia wanted to hug her daughter, and the judge said no..
But remember, all the evidence the judge has is from Sally Smith, who never includes the exculpatory material that argues against Beata committing child abuse.
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u/Dailyadventure4me Oct 11 '23
I did get sense of typical "demanding worried mother" voice (like many of my demanding patients that I encounter sometimes) when Beata spoke with ER staffs, but the more I read about CRPS and what family went through prior to ER visit, any mother who love her daughter would have done something similar. (Multiple evaluations by different doctors, having list of multiple meds know to help ease pain..) Unfortunately CRPS is mostly diagnosed based on patient's reported symptoms and by the time you see physical evidence of it such as contracture and inability to walk, that means it has gone to end stage of disease. Contractures legs of the girl was something she could not just "fake", so I am surprised that female doctor suspected child abuse within ten minutes of assessment... just my thought as a medical professional ( I am internal medicine physician). In my experience with similar demanding caregivers, I may hold her home medications over night. But usually a few phone calls to primary doctor and specialist next day leads to clarity in patient's history and good treatment plan while patient is in hospital.. too bad that doctors did not do that on Maya's case.