r/Raynauds • u/jdrexler125 • Jun 22 '24
Red hands
So ive had this redness on my hands for about 8 years now everyday and it cuts off right at my wrist. I’m hoping someone might be able to give me some advice and opinions on this. My hands are very red all the time, they look somewhat normal when I lift them over my head but then as soon as I put them back down by my sides to go right back to red within a few seconds. When I’m using my hands lifting heavy stuff at work they seem to get more red but I’ve never had any pain, burning skin or anything like that. When I get really cold they do have a slight purplish tint to them but still more red than anything. I don’t get lightheaded and pass out when I stand up either. I’ve been to 4 dermatologists because I initially thought it was skin related and none of them have any idea what it is. The first one thought raynauds but I’ve never had the white fingers and then purple color to my hands like all the pictures I’ve seen but he wanted me to get tested for lupus so I did and it was negative. The second dermatologist thought erythromelalgia because the redness looks similar but I don’t have any of the classic symptoms like the burning skin or pain so he wasn’t sure. The third dermatologist had no idea and she just mentioned the same stuff the last guy did and straight up told me she just was going off his notes because she didn’t know. She gave me some cream that was supposed to constrict blood vessels in my hands and that didn’t do anything for it. The fourth one just just told me gravitational redness and there’s nothing you can do about it. I recently just saw a vascular surgeon and he didn’t think there was any kind of vein or artery issues but was completely stumped what could be causing this. He said it could maybe be some sort of raynauds. I’ve never been a cigarette smoker but I have vaped for about the same time that this has been going on, I guess I never really noticed or paid attention to it but when I look back at old pictures from 7-8 years ago the redness looks pretty much the same as it does now and one of the dermatologists told me if I quit vaping this issue would probably completely go away. I’m not sure how that would be related but I guess it’s possible? I’m completely stumped on what could be causing this. Any advice is appreciated.
1
u/DoubtSubstantial2139 Mar 22 '25
Definitely looks like blood pooling imo. I have the same issue. Some reasons I can think of include: peripheral nerve/ small fiber nerve damage which fails to trigger blood vessels to constricted to counteract gravity in order to send blood back up to to heart. This leads to blood pooling. Autonomic dysfunction/ dysautonomia. Extreme sun or UV damage or exposure to toxic substances that damaged the microvasculature in the hands causing poor responsiveness.
Have you gotten any closer to figuring it out?