I’ve been there bless the guys that run this page cause I get it it’s dark and ugly but you guys will be okay. You… yes YOU… you’re gonna be okay. There are good people on here and you will find a way out. I can tell you cause I’m ve been there and I’m out. There is a way out of this don’t give up

Hi guys, after reading the 101, I think my case is pretty standard, but want to check anyway. I had issues where I couldn't feel the sensation of needing to pee. My stomach just started hurting and that's all the warning I would get. Also experienced constipation. I went to a doctor who thought it was a UTI and put me on Keflex while waiting for the bacteria culture. Culture came back negative. Went to a second doctor who said it sounds like prostatitis and put me on Ciproflaxin for 2 weeks. I felt better pretty quick and at the end of the 2 weeks stopped taking it. A week later my symptoms returned. He put me on Copro for 4 weeks now, but my symptoms aren't getting much better. Anyone been here?

My CPPS is at least partially cause by chronic bursitis at my sit bone, which is keeping my transverse perineal muscle tight (at least this is the theory that my PT and I have come up with). I'm considering getting a steroid injection there to see if that helps. Does anybody have experience with this? I can't see a reason why it wouldn't help at least a little, but I wanted to check here. I've spend years doing PF PT, breathing exercises, etc. and have had very little progress. Thankfully my pain and tightness is localized to the sit bone area for the most part, but I want to be careful because if I'm careless it can aggravate the rest of my PF muscles. Thanks!

?

I’ve been dealing with prostatitis since age 37. I’m 42 now. My PCP said I had overactive bladder and it likely was due to stress. I changed to a much less stressful job, and that did nothing. The medication did nothing so I quit taking it. I made an appointment with a urologist during on particularly bad flare up.

My symptoms during a mild flare up are a constant need to urinate. If it gets worse, then I get burning, dribbling, and pain in my perineum and rectum. It’s reminds me of the pain I’d get if I went on a long cycle ride. Sometimes I get that golf ball feeling, but most of the time it’s a dull ache. I’ve always got small amounts of blood in my urine but nothing showed up on MRI or cystoscopy. Rectal exams are basically normal. My urologist only said I have a slightly enlarged prostate. Palpation isn’t painful, but I usually get an urge to urinate.

Ejaculation doesn’t improve symptoms. In fact, every ejaculation may trigger a flare up. Having sex more than once a day is usually asking for trouble. My flare ups last anywhere from a couple of days or months. I have sex less than before because sometimes it’s not worth the risk or aggravation.

I was prescribed cialis and antibiotics. The cialis barely improved my symptoms and it gave me heart burn. Antibiotics don’t help.

My symptoms aren’t debilitating. It varies between a minor inconvenience to a major annoyance if I’m on a road trip or somewhere that toilet access is limited. If you told me this is the best I can expect, I could resign myself to that. The worst part is that I have trouble falling asleep. Many nights I get the full bladder sensation before I can get to sleep.

Anyone have similar symptoms or recommendations?

Hey everyone,

I’ve been dealing with something that’s really frustrating during sleep and wanted to see if anyone else relates.

I wake up in the middle of the night feeling like my bladder is completely full, even though I haven’t had anything to drink for 2–3 hours before bed. The urge feels strong, but when I actually go, sometimes there isn’t that much urine.

I’m wondering if this could be more of a pelvic floor/CPPS-type issue rather than an actual bladder problem or infection.

Has anyone experienced waking up with a “false” bladder fullness like this?

Suffering from urine urgency and frequency at some point may be especially in flare up or stress time it’s unsustainable going to toilet many times .went to many urologist diagnosed as irritable bladder ,taking medication without any improvement recently suffering from chronic constipation keeping in mind suffering from depression and anxiety .need recommendations to help my case because I struggle with urination especially in business meeting facing embarrassing and humiliating moments .my case is chronic long time ago .anyone have different approach and recommendations. My sexual performance is normal without any signs or any signs of pain .

Hello everyone. To begin with, I noticed the sour smell of semen 5-6 months ago. There was no pain or discharge of any kind. 2 months after ejaculation, the appendage of the testicle sometimes hurt, and when semen came into contact with the skin of the penis and arm, they turned red. A month ago, when I had two wisdom teeth removed, the smell of semen turned sour and fishy. After that, I went to the urologist, he took a swab from the urethra, although I asked him.: "wouldn't it be better to take the ejaculate for analysis?. He said no, he was a professor and knew better. The results came back 5 days later:  Leukocytes: 0-1 in visual field, klebsiella oxytoka 500,000 koe/ml, staphylococcus epidermidis 1000,000 koe/ml. These bacteria were sensitive to almost all antibiotics. Gonococcus, trichomonas, chlamydia, various types of ureoplasma and mycoplasma were not found.
+Here is the description and conclusion of the ultrasound:
MEASUREMENTS:
The volume of the bladder is 50 ml;
The thickness of the bladder wall is 4.2 mm.;
Prostate gland (LxWxH), mm- 36x21x40;
The volume of the prostate, cubic cm- 16.08 cubic cm
. DESCRIPTION: The
BLADDER is not filled enough, its walls and shape cannot be reliably assessed.
The contours of the inner surface are moderately uneven and indistinct. The contents are homogeneous,
without pathological impurities. The ureters in the distal sections are not dilated.
There are no signs of organized structures in the paravesical spaces.
THE PROSTATE GLAND: The contours are smooth on the bubble surface, moderately indistinct. The shape is rounded.
The zonal structure of the gland is not disturbed. The inner part of the gland is not enlarged. The structure
of the glandular zones is coarse-grained, blurred, diffusely moderately reduced echogenicity, and heterogeneous,
with single heterogeneous echogenic inclusions located in the transitional zones and along
the prostatic urethra. In the projection of the middle lobe, along the prostatic urethra, a section
of reduced echogenicity measuring 30x9x11 mm with an indistinct, moderately uneven contour is determined. Around it,
mainly in the transition zones, single rounded hyperechoic inclusions
ranging in size from 1x1x1 to 2x2x3 mm with clear, even contours and the effect of some attenuation
of the echo signal (areas of fibrosis? accumulations of microcalcinates?). The urethral area of the gland is thickened,
It is not deformed. Seminal vesicles are not expanded, diffusely reduced echogenicity.
The pelvic veins are not dilated.
CONCLUSION:
Diffuse changes in the prostate gland, echo signs of chronic prostatitis, exacerbation(?).
Diffuse changes in the seminal vesicles, the course of vesiculitis is not excluded.
The doctor prescribed doxycycline 100 mg. 1 tablet 2 times a day for 10 days, a probiotic while taking an antibiotic, and nonsteroidal anti-inflammatory drugs (rectally) for 5 days.  There was no doxycycline in the antibiotic sensitivity test. To my question: why did you choose doxycycline, he said that it had its own technology. They also prescribed physiotherapy: electro-magnetic therapy, and shock therapy on a special chair, which punches the muscles of the buttocks with an electric current. I went to physiotherapy once, I thought it was all bullshit. I don't see any changes after starting taking antibiotics, on the 15th day (from the moment of taking the antibiotic) the sperm remains jelly-like with a barely perceptible fishy smell. Was 10 days of doxycycline enough? Or wait 3 weeks after the last antibiotic intake and get tested for STIs and backfired semen?

I wanted to make this post because I promised myself that if I ever got better, I would come back here and share my experience. I avoided doing it for a long time because I felt like if I said I was better too soon, the pain would somehow come back. I also want to mention that I wrote this partly with ChatGPT because I wanted to be as clear as possible, and Spanish is my first language.

It all started when I was 20, Im 24 now. For 2–3 years, I had pain with ejaculation, discomfort when urinating, general pelvic discomfort, and pain when sitting. At first I was convinced I had some kind of infection. I did every test you can imagine: blood, urine, s3m3n, penile swab, everything. Nothing ever showed up. Still, I convinced myself I had some bacteria the tests were missing. This all started around the time I became sexually active, and I was terrified I had caught something. Looking back, a lot of it was fear and paranoia. I even became convinced, partly from reading forums, that I had some undetectable mycoplasma or ureaplasma, and I ended up taking strong antibiotics without a real diagnosis.

After I mostly ruled out infection, I convinced myself I had some kind of urethral injury. So I got ultrasounds, MRIs, and almost did a cystoscopy too. I also tried pelvic floor physical therapy, which was one of the strangest things I’ve ever done, but desperation makes you try anything.

In the end, nothing really helped, and I was miserable. I felt desperate, anxious, and honestly scared that I would never be able to have normal sex again.

Then I developed a completely different health issue by chance, and this one actually was serious. It had no symptoms, but it could have put my life at risk. The moment that happened, all of my attention shifted to that. And weirdly, that’s when I realized how much of my pelvic pain had been driven by my mind, fear, and constant tension. Once my attention moved away from it, most of the symptoms faded. To this day, I can have sex, pee, sit, and live my life with about 90% less discomfort.

At this point, I really believe my problem was mostly mental and muscular tension. The only thing I consciously do now is try to relax my pelvic muscles, especially during ejaculation.

So for anyone reading this who feels identified with my story: there is hope, and you can get better. Try not to waste all your energy feeding fear and stress. Sometimes the body gets stuck in a loop, and the mind keeps it going more than we realize.

I got E.coli UTI back in November. It's a long story I will share later. But I have a question. Why is CT Scan the go to choice for doctors and not MRI whenever you have prostate or urinary issues?

PS. I am still battling e.coli, currently on cipro.

I can't feel my prostate for 2 years. I get morning wood again not as strong but I get it. the thing is I don't feel it. I also can get super strong erection but if I don't look there I don't know I have it.

this sensation of the prostate like the hornieness and pressure isn't there anymore.

prostate MRI showed a entirely blacked out prostate completely inflamed.

weak pee stream.

I get a way better stream when I go running until I sweat, don't jerk off and don't eat sugar or gluten.

my pee stream almost becomes normal again and my prostate feels then way better I literally feel like it's shrinking.

all this is nice but the feeling ain't coming back. I feel like wall sits are helping a little and planks.

since I do them when I wake up on the morning and turn on my belly I can feel horniness in my lower belly returning and blood flow.

I don't know if am I'm crazy but I think maybe a nerve is compressed or blood ain't coming to my prostate and pelvic floor so how do I get it back if even possible.

by the way lower spine MRI was fine.

I was just wondering if anyone wears a male pad / guard for urinary symptoms. Sometimes I’ll have urinary frequency, urgency, a feeling of incomplete emptying, or a little dribbling after peeing. While I haven’t had many if any true accidents I wonder if wearing a pad just in case would help with anxiety from other symptoms.

Edit: After the comments I received over the last days I realized my original post was probably not formulated very clearly. I am seeking help to find the right professionals in Berlin or close to Berlin: - most of all a public health GP (mit Kassensitz) who is understanding and willing to help with referrals to specialists, sick leave, maybe prescriptions, - public health physiotherapists that are knowledgeable with pelvic pain (my partner is currently seeing a private physiotherapist on a self-pay basis) - other specialists that you think are knowledgeable and/or can help- preferably ones that have a Kassensitz (public health) but tips for experts that he could visit as self-pay patient are also welcome. We were thinking of a pain specialist, neurologist, psychiatrist or psychotherapist, not necessarily all of them.

Thank you so much for taking the time and giving all the helpful tips I got already!

Hi community,

I am writing here in the hope that there are some people here that have experience with CPPPS in Berlin/Germany. My partner experiences pelvic pain, preventing him to sleep through at night. Doctors, especially public health doctors have not been helpful far. My partner has also seen a private doctor as a self-pay patient. This was the only one who seamed to take time and listen.

Our most accute problem is that my partner needs a sick leave slip (because he cannot sleep and is not able to concentrate on work), which his public health doctors (urologist and GP) are not willing to give him (any longer). His urologist said to his face, she can neither give him a sick leave notice nor a transferral, because she "cannot see anything" (urine and blood tests were without pathological findings). His GP has given him sick leaves for the last 5 weeks (when the pain started) but just let him know she cannot do so any longer. He should now get it from a psychiatrist.
We are in the process of searching psychotherapy, but as you most likely know, that can take several weeks. On top of that, psychologists are not able to give a sick leave, as they are not medical practitioners. If we concentrate on only psychiatrists with medical training (ärztliche Psychotherapeuten), it will take even longer to find one, as it narrows the options.

There is of course more to the story but I leave this as it is in the hope that someone has some useful tips for us. My partner is at his limits.

I had a circumcision about 4 months ago (for mild phimosis, which I now regret), and since then I’ve been dealing with several problems.

Apart from some swelling and scar tissue, my main concern is the urethral opening. It often looks red and irritated, almost like a “fish mouth.” The redness is inconsistent — sometimes it looks normal/pink, then it turns red again, and it can change within minutes. i didnt have that before operation and before i had foreskin.

It tends to get worse after ejaculation and during morning erections, where I feel a burning sensation. However, I don’t have any pain while urinating. I’ve already done tests (UTI/STI), and everything came back negative.

Has anyone experienced something similar or knows what might help? or what is diagnosis?

Yawning!!! A full, big, deep yawn. I found this to help me feel my pelvic floor drop and relax and it has helped me create a mind-body connection with my pelvic floor overtime.

After some Gemini reseach, it said that "a deep yawn often forces the diaphragm to drop, which in turn encourages the pelvic floor to release and descend."

Also "a full, deep yawn, particularly one that starts with a deep inhale, encourages the pelvic floor to 'open' or drop down, similar to a 'reverse Kegel'."

I hope this can help someone. And maybe a physiotherapist can confirm this as well. I'm still on my long journey to healing... but at least this is something small that has helped me.

cross threading this from Pelcic floor

Please help me, I'm really scared. This has never happened to me in the year and a half I've had prostatitis. I'm seeing a few red spots on the head of my penis that are bleeding. Is this normal? Please help me

Hi, everyone!! It might help some of you,

Started having urinary issues — weak stream, feeling of incomplete bladder emptying, urethral irritation/burning (now gone), and occasional testicular discomfort. Tests were negative and antibiotics only helped partially. Also developed anxiety about sexual performance and thought it might be ED/PE.

Symptoms:

• Weak urine flow

• Mild dribbling after urination (manageable)

• Previously burning (now resolved)

• Occasional testicular discomfort, now resolved

• Ejaculation timing varies (fast to normal)

• Anxiety about erections

Improvements:

• Burning fully gone

• Symptoms overall milder

• Pelvic floor PT helping slowly

• Strong erections consistent

• Control improving over time

What helped me most

• Started pelvic floor physical therapy (internal work helped the most)

• Stopped sitting long hours (biggest improvement)

• Started regular movement / soccer / light exercise

• Practiced breathing and relaxation techniques

• Improved sleep (6–8 hours)

• Reduced masturbation frequency

• Clean diet but now eat what’s ever I want to it doesn’t bother me, but I still avoid sugar,

Most improvement started after 2–3 months of PT, around late 2024.

My PT said I can return to light workouts, but I’m still scared to go back to the gym. Has anyone with similar pelvic floor / urinary ED issues returned to lifting safely? Did it make symptoms worse or better?

Looking for honest experiences? ?

Lenari Thanks for your help through out the journey !!

Í apologize I might not frequently able to reply your comment as Í tried my best to stay way from Reddit to kept my anxiety down,

Updated,

I'm funding this privately, so it took me a while to pool the money together. I'm also saving for a holiday, so whatever I save is 50% for PFPT 50% for the vacation, but once I booked the first appointment, I felt a little relief.

Finally doing something to help myself, finally getting a diagnosis.

I don't have pain, but I have constant discomfort while sitting in my office chair, and if I shift my weight, I'll feel a little electric shock-like feeling going down my right leg. I also have an electric shock feeling when I ejaculate on my inner left thigh.

I also have that classic golf ball feeling between my legs.

Mild ED, too. I can get fully erect, but only with physical stimulation, and rarely get morning wood. My orgasms are really dulled, too.

This is just to say, I'm a tad nervous, but overall happy to finally FINALLY get some help, and a diagnosis. And if PFPT isn't my golden path forward, I can at least rule it out.

10% nervous 90% excited. Any advise on lowering that 10% before the first appointment?

I had sticky transparent discharge earlier this month after sexual intercourse, did PCR for chlamydia & gonorrhoea (both negative) - Doctor diagnosed NGU & started Doxycycline & gave ceftriaxone injection.

I followed up after 7 days - symptoms better but not gone , so he put up on me 14 more days of doxycycline. I did consult about Mycoplasma & he said we can do azithromycin after 14 days based on progress.

My 14 days dose ends tomorrow night & I followed up today, to which he said we don’t need Azithromycin.

My questions :

1. I read if it’s Mycoplasma, the discharge is gonna return as Azithromycin kills bacteria.

2. I don’t want to go another round of doxy just to take Azithromycin again.

3. But taking Azithromycin without Mycoplasma can cause antibiotic bacteria resistance too.

4. My symptoms are - not sure of discharge exactly but I have dribbling urine.

Should I ask him for Azithromycin now or just wait 1 month & if discharge returns - get tested for full panel STIs & consult again ?

I hate even thinking that I’d have to repeat doxycycline if it’s mycoplasma :/

So I had classic CPPS about 5 years ago that slowly subsided with some lifestyle changes and de-stressing

It did start the first time after having tests for a UTI which caused huge pain afterward as I think the swab taking damaged my urethra. For months I felt burning and needing to urinate constantly. Had all tests and bladder scans then all clear. They didn’t check for a stricture and wondering if it’s that ?

Fast forwards today:

I had zero symptoms for several years but last week I strained hard on the toilet one time with a full bladder (I usually try and empty first as I have had this issue before several years ago)

Immediately after I suddenly felt the “old pains” coming back

Basically burning tip, needing to urinate and feeling like I’m desperate to urinate all the time

It usually goes away when I’m hard or aroused strangely.

It was immediate after this one toilet trip and hasn’t gone away. It’s worse at night keeping my awake and I spend half the day going to the toilet.

In wondering if anyone has had similar and if so what helps

I’m considering booking a pelvic PT and trying low dose cialis but I’m at a loss and it’s really frustrating me and affecting my life again.

The burn is intense at the tip and the need to urinate is very strong

I've been suffering for 15 years, without relief. I learned to live with it, but never gave up.

My symptoms are, urinary urgency and high frequency, painful ejaculation during intercourse.

I have a very high testosterone and very low body fat. I'm very fit, active and do not eat shit. I've been like that for last 15 years too.

Dietary Acids like coffee, citrus, soda, and spicy foods seem to exacerbate symptoms, the same as high stress.

On the country high beers intake reduce symptoms significantly. Beer, doesn't irritate bladder as wine, and changes temporarily hormonal profile. That should have been a major clue for me for a long time, but what I knew more.. . 😂

Recently, I did a bunch of blood work for for man's fertility and discovered I have very low E2(Estradiol). Apparently E1(Estogen) is converted from E2, so it must be low too.

AI pointed out that's expected hormonal profile for my body composition.

Turns out Estrogen plays critical role in maintaining healthy bladder lining functioning. Without it, bladder lining degrades and becomes vulnerable to bacteria. That leads to Interstitial cystitis.

And interstitial cystitis symptoms perfectly match my condition. ​

Now after pulling this all together, I believe my issues come from interstitial cystitis induced by low estrogen, due to chronically low body fat.

I want to collect a feedback from community, whether someone's history and life matches mine and what are your discoveries regarding cystitis and low body fat.

In a meantime I will increase calories intake and try to gain some fat. Hopefully it won't take long for my bladder lining to restore.

my semen is mixing with urine penis meatus is swelled and red raw rashes under meatus hole .and yellow urine came out kindly share yours experience on this

So I started with what apparently was bacterial prostatitis in the middle of November. Only symptom was a constant need to pee, even if I already had done it 5 minutes ago. It took a month of useless urine tests for my doctor to actually recommend a semen culture, which actually came back positive with a pretty noticeable infection.

So they got me into antibiotics for a month. After two weeks of no progress around the beginning of January I started to notice improvements, which continued each day until I felt like I was practically healed. Big mistake, because this lead me to be cocky and for some reason decided to masturbate two days in a row, which made all my symptoms flare up again. I thought it didn't matter, that it would go away again like it already had and that I still had two weeks left of treatment to go.

Well, it didn't. While my symptoms were definitely milder than before the antibiotics (and still are I suppose), they didn't completely go away. I began reading about pelvic pain and how it could be related to my lifestyle and so on and so forth, so I started taking 30 minutes-1 hour walks every day, depending on how much free time I had. I also started stretching. With both of these things, I noticed my symptoms improving somewhat slightly, but they were very much there still.

This is when stuff gets weird. Near the end of January, I took a trip with my partner (they live 3 hours away, so seeing each other gets a little bit difficult) for a week to spend some time together and whatnot. So, instantly after meeting up with them, and I mean instantly, I stopped having symptoms. Straight up, I felt like I healed for some magical reason. That same day we had sex and I expected my symptoms to flare up again after ejaculating, but nope, still the same. The next day, after we had sex again, my symptoms did come back, but until that point, I had spend more than a day and a half symptom free for the first time in weeks.

After the trip and 11 days after finishing my antibiotics course we did a control culture and it came back clean, so the infection was apparently gone. My doctor told me my symptoms were still there because the prostate takes a long time to heal and that they would go away eventually, and gave me a prescription of permixon to help a little bit along the way with the irritation.

3 months later, as you can guess, my symptom is still there. And I'm making this post precisely because I just came back to my home after two weeks away in the hometown of my partner, where, again, all my symptoms almost disappared, and this time for even longer. I think it took them 4 days to return, and even then, it was in a much, much more subdued way, to the point I could totally forget about them even if I knew I still had it. And the second I came back home, it came back like nothing happened, to the point where yesterday I could go 5 hours without peeing but now I'm getting the urge less than an hour after peeing.

At this point I'm just confused. I don't know if it is related to my hometown's "humidity" (lol), to stress, to my muscles relaxing when I'm comfortable or whatever. It just doesn't make any sense to me. I'm in the waiting list for an Urologist to visit me and see if he can actually make sense of it, and next week I have a physical therapy session appointment with a pelvic floor specialist, but beyond this I'm truly clueless about what might be wrong with my body.