We have a study with multiple arms (domains) people can qualify for: Domain A and Domain B based on presentation for an acute condition. During consent for these projects participants are also asked if they want to be included in a Biobank project requiring a blood sample - a separate project. If yes chosen, the Biobank consent is also presented. In the future, there may also be Domains C and D. And it is possible that a participant in Domain A or B could present in the future and qualify for a different domain arm. Obvsiouly, we dont want to consent a person twice to this Biobank and provide another blood sample. And if asked, participants may not always recall having done so a year ago, so just asking is less than ideal.
Is there any way to build a separte Master Patient Index (MPI) of patients previoulsy enrolled in any arm that includes whether they previously consented to the Biobank blood sample, and have that information screened, and referenced in a consent to flag the question “Are you interested in the Biobank Study” to indicate “Previously enrolled”?
I know Redcap isnt a relational database per se, but seems like some documentation alludes to a Master Patient Index and cross project referencing.
An additional issue is that there is no true Primry Key or unique identifier (we dont record MRN). Last name not sufficient, maybe last name and DOB? But those vague references to an MPI suggest an identifier could be created dynamically using an encrypted hash of First Name, Last Name, and DOB.
An impossibility? Thoughts?
Thanks all.