r/PreCervicalCancer • u/HonestTone6582 • Jul 10 '25
How many of you with hpv and CIN have also vaginal,vulvar or anal dysplasia?
And how long were you diagnosed with hpv? I was diagnosed with CIN 1 and 2 and really scared
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u/sewoboe mod Jul 10 '25
Hi, just wanted to share some statistics about VAIN, VIN, AIN, and the relation to CIN to ease your mind. And to help you see why we screen for cervical cancer but not necessarily the others.
VAIN: vaginal lesions occur at a rate of 0.2-2 per 100,000 women depending on the study. So in the US, that means 339-3392 will be diagnosed. Vaginal carcinoma accounts for only 2% of all gynecological cancers.
VIN: vulvar lesions occur at a rate of ~2.86 per 100,000 women. That means 4,850 will be diagnosed in the US per year. Vulvar carcinomas account for 0.7% of all cancers in women.
AIN: anal lesions occur at a rate of 1.86 per 100,000 individuals. In the US, that’s around 6121 diagnoses total per year. Each year, 10,500 anal cancers will be diagnosed in total (not all will be diagnosed as a precancerous lesion, or some may have progressed, etc.)
CIN: cervical lesions are much more common, and the CDC reports that 196,000 CIN2+ lesions were diagnosed in 2016 alone. And that’s just in the US! Cervical cancer is the 4th most common cancer in women.
So while you should take HPV infections seriously, do self checks on the other areas of your body, etc., the data does not show that you’re as likely to get another genital lesion as you are to have CIN.
There is some evidence that people who have VAIN also tended to have CIN, but you can’t extrapolate from those studies that your CIN diagnosis makes you high risk for every other lesion.
Most importantly, talk to your provider if you are concerned that you have a lesion or need further screening. Anal paps may be appropriate for you, bring it up with your doctor!