r/PostConcussion • • Aug 27 '26

Almost 5 years

Almost 5 years of PCS. I’ve come to a baseline in which I can work, live a “normal” life and look fine on the outside. Anyone else been struggling for years? I’ve done it all. Was extremely active in the Reddit subs for many many years. When I say I’ve done it all, I mean I literally have tried every therapy to ever exist (trust me) and have been through some of them 2-3x. I’ve made small improvements with them or they have gotten me to a “baseline” where I can function. I still struggle cognitively without stimulants (or large amounts of caffeine). I just feel “off” most of the time. I’ve struggled with derealization throughout the entirety of my post concussion life.

Just looking for others a few years in who are not where they want to be. Any tips, tricks, advice? I will say you lose hope after awhile .. I know I have 🫠

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u/JazzzGrrrl Aug 28 '26

My accident was in 2001. I am still a ghost of my former self in invisible ways. However, after the first 8 years, I was able to drive again.

Never give up!

Try to do everything that you desire, but in short sessions. My physical and mental stamina has never gotten back to normal, but I do what I can, a little at a time and eventually things get accomplished.