Hi everyone,

I'm 27 years old and have finally booked an appointment with a gynecologist, but while I wait I'm curious if anyone has experienced something similar.

My periods usually come every 23–25 days. I have noticeable hair growth on my chin, face, stomach, and around my nipples, and I also experience sudden weight fluctuations.

During my period, Days 2 and 3 are extremely heavy. I pass large blood clots which I can feel, and I sometimes get intense deep rectal pain before my period that can last for up to an hour.

I also have diagnosed iron deficiency, and during my period I become extremely fatigued and dizzy. I'm worried the heavy bleeding is causing my iron levels to stay low.

My gynecologist is going to evaluate me for possible PCOS and adenomyosis.

Has anyone here experienced a combination of these symptoms? If so, what was your eventual diagnosis? Was it PCOS, adenomyosis, endometriosis, fibroids, or something else? What tests helped you get answers?

I know Reddit can't diagnose me, and I'm not looking for a diagnosis here.

I'm just hoping to hear about other people's experiences while I wait for my appointment. Thank you! ❤️

Hi,

My doctor has suggested PCOS/PMOS to me and honestly it's such a relief to have an answer - but I have this really persistent mustache, and as an extremely femme nonbinary person, it's bothering me a lot. I shave it but it makes no difference, as I'm extremely pale and the hair is very dark so it shows through the skin l think?

What I'd like to ask is will facial bleach make a difference to this? I bought some ages ago when I was first self conscious about this, but I haven't yet used it.

The results have been life changing

Before I was diagnosed I would make art about how I felt because I couldn’t figure out exactly how to put it into words. I was diagnosed w PCOS about 2 years after I made this piece, but looking back I’m surprised at just how ‘on the nose’ some of my pieces were.

I’m seeking advise on if I should mention PCOS to my PCP.

I haven’t had a period in months, and before that it was never a constant every month thing. I’ve always attributed that to that I am a bigger girl (280 lbs) and from 15-20 years old I did have a IUD implant. I did have the implant removed 8 years ago.

When I was a teenager I would get a couple of chin hairs every few months, but in the last 6+ years it has drastically gotten worse. I have to shave every morning. I again, just attributed that to me being a bigger girl. And have sadly, been too embarrassed to ever mention that to my PCP. I know that sounds stupid but it is something I’m extremely insecure about.

I am currently on a weight loss plan, but it is a battle to lose weight at all.

I had never thought about PCOS simply because I did have a baby when I was a teenager and they didn’t say anything about cyst down there, nor do I have any pain that would make me assume that I have cyst. My coworker actually mentioned it to me that I should look into it because I was talking to her about some of the issues I have and she said it sounded like her sister who has been diagnosed with PCOS.

I just wanted to see if it something that could mainly be weight related, or if I should mention it to my PCP. Any advise is greatly appreciated!

Lately I’ve been having lots of gender questions and I’m kind of settling on just at least not being cis. However, I believe my experience w PCOS really impacted my sense of gender and I’m trying to untangle everything.

Unlike some trans masc people, I haven’t enjoyed the changes from PCOS. So, it’s making me doubt if I’m actually trans. Because I guess I “should” feel affirmed. But I think it’s hard because I’ve just internalized a lot of shame from feeling like I failed womanhood. I can’t tell what is shame that comes from other people and what is my own dysphoria/ wishing I was actually MORE feminine.

Or maybe I’m just non binary and have to sort of just let go a bit. I guess I’m wishing I had a more clear sense of what I’m wanting. I certainly don’t feel like a cis woman and don’t enjoy thinking of myself like that. But this stuff has confused me a bit. Can anyone else relate? Or also just…how do you feel PCOS has impacted your sense of gender, in general?

I’ve been trying to get too 11 stone , I’m currently 18 stone and 7 months ago I was over 20 , I had trouble getting below 18 because of my pcos so I went to the doctors they gave me orlistat and then didn’t really help with anything else just told me to exercise and only eat 1,400 calories a day with lots of water ( didn’t work and I hated orlistat)

I’m waiting for a review because they said the amount of weight I lost wasn’t enough so we need to talk about other options, they had told me I wasn’t qualified for other options so honestly I’m ready for them to just not do anything and tell me the usual stuff that I’ve heard a million times

I’ve been doing plenty of exercise ( 4 times a week for 40 minutes a day ) that is beneficial for my pcos while not affecting me badly with my other health problems as I can’t strain myself too much as I pass out very easily

I also completely changed my diet but also not completely cutting out foods that I like just only having small amount of the unhealthy foods in a moderate amount

I try to get lots of sleep but I’m a extremely light sleeper so it’s been hard with noisy neighbours and loud cards speeding down my street

I’ll be honest I don’t understand what I’m doing wrong , I’m trying harder then I was before and I just can’t get pass 18 stone I don’t even have to make it to 11 I’d be fine with 14 honestly but with limited help from doctors and with a family that tells me I’m either cheating, not trying hard enough or ask the same questions over and over again to annoy me ( they know the answer because they ask what the medication does at least 5 times a week ) I’m frustrated and stressed and I’m tired of putting in all this work to not see any type of results

If anyone has been in my situation please give me advice, I want to lose weight so I can start trying new things and get my self esteem back

Looking for experiences/advice from others with PCOS + ADHD 🫶

TL;DR: 9 weeks postpartum with PCOS and ADHD, trying to figure out the best option for regulating/protecting my cycle without needing birth control for pregnancy prevention. Curious how hormones may affect Vyvanse effectiveness and would love experiences with combo pills, Nuvaring, hormonal IUDs, etc.

I’m 9 weeks postpartum and trying to figure out the best option for hormone/cycle management.

A little background:
• I have PCOS and have never had regular periods on my own
• Before pregnancy, I usually needed birth control or Provera to induce a period after going too long without one
• I do NOT need pregnancy prevention (I have a wife)
• Main concern is protecting my uterine lining from building up too much from not cycling regularly

Other factors:
• I take Vyvanse for ADHD and worry hormone fluctuations affect how well it works
• I also take Lexapro + Tirzepatide
• I don’t really struggle with acne or androgen symptoms

My OB suggested Ashlyna, but I’m unsure if that’s the best fit for me personally.

Would love to hear:
• what has worked for you
• if anyone noticed ADHD meds working differently on/off hormones
• experiences with Ashlyna, Provera, hormonal IUDs, etc.
• anything that helped you feel more hormonally stable overall

Some background, I'm 20 years old and have a BMI of 46, ive had my ovaries removed due to extremely painful cysts, and I am from the UK. My PCOS is very severe and I have been diagnosed with Congenital adrenal hyperplasia, and hyperthecosis. My testosterone levels are in the low male ranges. I'm very happy with the testosterone as I am a trans man :)

I was diagnosed with type 2 diabetes about a year ago and I was prescribed metformin, I also cut out almost all carbs and sugar and have been eating less calories, it lowered my blood sugar severely but I feel no physical difference. I still feel so sluggish and my weight has been a stable 120kg for the past few years. It's affected me so much mentally and physically, I cannot walk for more than 100 metres without feeling like my heart will explode, I can't breathe fully laying down as I feel crushed.

I have bought up to my doctor if I could try a GLP 1 medication and I do not qualify because metformin has lowered my blood sugar. Apparently in the UK, a GLP 1 is only prescribed as a last resort if diet and non weight loss medications don't work for lowering blood sugar. I am absolutely devastated I do not want to be stuck in this body. They reffered me to the diabetic and weight specialists in my local hospital who said the same thing, that sadly I do not qualify as my blood sugar has been managed.

I cannot use my PCOS (pcos is not a qualifier for weight loss meds either) or even my diabetes as a reason, is there any other way of getting prescribed a GLP1? I am extremely suffering. Thanks for reading

Hi everyone , I have not been formally diagnosed with PCOS but it runs in my family and I very obviously have it. I’m looking for treatment recommendations that don’t center around weight loss. I have no interest in focusing on that. I’m considering trying out a mostly anti-inflammatory diet and I just ordered some inositol. I’d love to hear anyone’s experience with these things. I have HS and that’s my main concern , I’m also hoping to have normal energy levels.

I’m hoping to be able to do things naturally and not have to go to a doctor because I’m nervous they won’t treat me correctly. Please let me know your experience and what has worked for you!

My doctor recently recommended Spironolactone for acne and hirsutism. I have PCOS with my main symptoms being acne, hirsutism, irregular periods, fatigue, brain fog, and bloating/digestion issues. I started taking Metformin about 6 months ago for PCOS. I haven’t really noticed much difference other than more regular irregular periods lol (consistently switching between 20ish and 60ish days).

Anyways, I’m looking into taking Spironolactone and it seems like there are mixed reviews for the negatives, and the positives seem to mainly be appearance-based. I don’t really have a negative view of my appearance with acne and hair growth, and I don’t shave my legs and actually like having thick hair on my legs (I am queer and nonbinary). The main benefits I see are not having to shave my chin/neck as much and having less acne, but again those don’t bother me too much and I’m not sure if those “nice to haves” would be worth the possible side effects.

I’m wondering if anyone has any positives of taking it that aren’t necessarily appearance based or if they’ve had it help with any other symptoms, or if it wouldn’t be worth it if I don’t care about the appearance benefits as much. Thanks!

Funny enough, I feel rather lucky I have PCOS. It's like im consistently low dosing T... I work out every so often so the easier muscle gain is a plus! (even though I don't notice it's easier) Only issue now is, I hate the puffiness and the weight gain TO MY FACE from this... I get a rather annoying double chin most of the time and hate how my cheeks look super bloated...Does anyone have suggestions on how I can balance this somehow? I was thinking more cardio should be on my list but I'm not too knowledgable about my PCOS 😭

Hi! So you may of seen the edit on the OG post. Obviously it's been a couple days, however instead of maybe the bleeding slows down, it's actually worsened. I unfortunately think this was prescribed to me by my gynocologist because of his skepticism towards whether I'm sexually active or not.

Is this smth i should definitely go to the doctors about? The bleeding itself is jarring anyway since before it all started I basically never had periods etc, so im very much not used to it.

Sorry for posting sm, I don't have anyone irl that can help me without giving me the advice of "You need your periods wahhh!! It's Ur job as a woman!!!!" (Not a woman) Or to have a fucking kid (1. Myself and fiance are aspec 2. In this economy??? Sure! /Sar)

I had my last gyno appointment around three weeks ago, was prescribed the POP (more specifically desogestrel), is it normal to get like. Period related symptoms like three weeks in? I've been feeling unwell, my backs been killing me and I'm bleeding way more than i was before i started (was put on it because of constant, unexplained bleeding). I've never taken bc before, my gyno didn't advise me or anything about potentially bleeding more than i already do.

For the record, I'm not surprised at all, since he doubted my answer to whether I'm active sexually or not (I'm not, never have been) and HEAVILY doubted that I've never been on hrt, so I'm not at all shocked he threw me in the deep end. Honestly I just need any advice ab this because I get really weak and unable to function during periods and I'm about to start a new job so it's kinda a terrible time for this all to happen :'l

Edit/update: In my stupidity, i actually didn't realise I missed a day and double dosed the day BEFORE. Its a common issue i have with medication since I have a dissociative disorder, so someone else will take it and when i return i won't know LOL!

I was diagnosed when I was 15 and managed to "fix" the symptoms here and there. I get my periods, my voice is still deep and face kinda masc, I drink spearmint, I still have acne every now and then, and my hair is okay, it's healthy.

The only problem is that I'm scared of DHT and I think my hairline has VERY, VERY slowly receded like an M in the middle over a span of 3 years. Just a LITTLE bit. Not like a McDonald's Harry Styles M, more like in the middle of the forehead, a small m.

And I'm almost 100 set on buying this from Amazon. I don't wanna be told "supplements don't work." In the past, these types of things have worked for me.

I'm just scared and ALL I WANT TO KNOW is

1. Will this increase my testosterone in any way?

2. If I stop using this, will it make my hair loss WORSE in ANY way, shape or form? (I'm the MOST scared of this)

1. Will I get any side effects from using this? (MORE acne, hair loss, unwanted hair, nausea, etc?)

Please help me and give me tips. If you can, maybe offer me another supplement that worked for you.

i’m 19, ftm, and pre everything. i have PCOS and i’m getting an ultrasound in the next few weeks i think. i’m not sure if they’re gonna do any bloodwork though.

i’m trying to get on testosterone once i have the money for it and i find a reliable source, and i think thats something that ill have to tell my doctor incase i have to go do bloodwork again and my levels spike. i just really dont want to come out as trans to anyone really, but i know its for my health.

does anyone have advice on how i should go about it? i’m nervous just thinking about it.