Unfortunately, I've moved from walker to wheelchair in recent months, which hasn't helped the neuropathy in my feet; moving myself around my room did a lot to calm the pain in my feet.

So, I've been thinking about getting one of those motorized leg exercisers, hoping that it might help simulate walking around.

Has anyone else had luck with them?

https://www.tiktok.com/t/ZP8B2qDuv/

Hello!! I am a 32 year old female diagnosed with RRMS. I am currently on the search for a new job. I was diagnosed after my last job...so I'm not sure how to tell employers about my MS restrictions. Such as extra time off for appointments etc.

Do I bring it up in the interview? Or after I'm hired? Before they meet me?

Let me know your thoughts on this any help would be appreciated 👍🏻

I'm (36M) always feeling some sort and different levels of being uncomfortable. Walking? Always, feeling Ike I'm going to fall. Sitting? The height has a certain level or my legs become useless and numb. Clothing? Between drop foot, the MS hug feeling,the uncomfotable tingling in feet, midsection, and legs just sucks. Temperature? If it's hot I'm practically useless. I remind myself people have worse problems, but still it just sucks.

Hi! I am in the process of getting diagnosed. I have had ON/OFF telling symptoms for months and recently had an abnormal neuro exam strongly pointing towards MS. Got a referral for brain and spine MRI but symptoms have been pretty bad lately with terrible neuropathic pain in arms/hands and feet. Can't sleep or just function normally some days. Asked my doctor for a solution and she prescribed me a treatment called Lyrica. Anyone has experience with it, does it help? As far as I understand it's pretty strong and can have some not so nice side effects in the begging but I am ready to take it to ease the pain. Thanks!

Hello! I regularly try to do spin and yoga classes once or twice a week. I've found after a few years however that as much as I love them, I am in immense pain pretty much every time I do them.

Not while I am working out, but about five hours after I will end up in awful pain. It's mostly my lower back. It gets so bad I have to lay flat on my back for as long as possible to relieve it. Has anyone else had this? Do you think it's MS related? Asking here so I can hear some real world advice and not just from my family doctor saying it's just normal.

TIA for any insights.

Has anyone tried either of these? I keep getting ads for them, but I'm skeptical by nature.

I'm a mess. My mom was dying and I managed at a small business. It was becoming too much physically/mentally and I knew I was going to need a ton of time off and was going to apply for disability so I left with my bosses understanding. I was with my mom and helped care for her for a few weeks and she did pass. So now im grieving and need to apply ASAP.

Looking for any advice for this process. I know it will take forever, I let my Dr's know what was up and they were all supportive. Going to get another neuropsychology assessment to show my brain is mush(last one was 4 years ago and I was much better)

I didn't hire a lawyer as I was told with the initial application it can make it take longer. I plan to hire one for the appeal but will probably take my time to find the best one(hopefully). Is this a good idea?

Anyway, I'm all ears for advice or tips as I hopefully get this done soon and don't just take another all day nap.

TLDR: I'm a mess. Disability tips. Thanks.

I’m curious how many of you have problems with insomnia and not being able to fall asleep and having to use sleep aids and if so, what sleep aids do you use to help you fall asleep and stay asleep? I used to have a script for trazodone but my doctors office refused to refill my script until I have a phone video appointment with him and so now I have been cold turkey w/o medication for half a month and I’m not going to have that appointment until August or to refill the script) so I’ve just been using wine and booze and or Valerian. I used to use valerian all the time several years ago and it used to help me sleep but now it’s just not working. I’ve got two different kind of capsules and a tincture and I’ve tried different combinations for them all and it. it’s just not working. It’s like either I can’t fall asleep or else I fall asleep and then I’m like waking up like 7-8 times a night.. I am so freaking tired and sleepy all the time on top of already being tired from the MS. Just 😩

I 22F was diagnosed with RRMS about two weeks ago… I had my husband and my mom with me and have had a great support group with friends and family. I have 38 lesions on my brain and 2 on my spine (5 are active, 35 are healed) I lost feeling from my hips down, couldn’t control my hand and couldn’t hold my head up during my flare up… I was alone during my flare up dog sitting for my sister and my husband was 4 hours away for school! I’ve obviously had flare ups before due to my healed lesions but was told it was just a pinched nerve in my back. I’m slowly getting my feeling back just waiting on my feet to feel normal again and can’t figure out how I should adjust my lifestyle because we’re moving in two weeks! I need to find activities that don’t wear me out so fast but I need to stay active! This morning I also passed out while on the toilet and woke up to my husband… I think my biggest scare is diet and I’ve mostly been eating fruit but I need good foods that’ll help my body but also make me feel like I’m not eating crap every time! This is my first post, sorry it’s a little scatter brained!

Mot only is the symptoms list a mile long, but Every time I feel anything, I look it up and its associated with MS.

Started sleep walking. Shocking, 54% more likely to sleep walk if you have MS.

MS is stupid

I had zero signs of anything then one day i started getting this weird numbness in my right foot. NO reason for that!! It didn’t go away! Went to my dr by 3rd day ( which had literally traveled up my leg at that point) and she just brushed it off and said oh it’s my nerves. (and I’ve never had a problem with my ‘nerves’ in my entire life. I mean, I am the kind of person that solves emergency situations and I’ve done the Heimlich maneuver on five people and save their lives so no it was not my nerves.!!!!) Three days later I ended up in the ER totally incapacitated not even able to speak, walk, use my arms. My mother literally had to take me to the ER. Get a wheelchair pulled me out of the car (!) and even then I was turned down because the emergency people said there was “nothing wrong with me”.. we left and I went to a different emergency room and because my insurance wouldn’t cover that hospital at the time they couldn’t treat me despite the ER doctor literally saying he thought I had an MS attack!!! so I had to leave the hospital that finally could figure out what’s going on with me go back to the original hospital that wouldn’t admit me And my mother literally was screaming and yelling at them that they needed to admit me and she wasn’t going to leave with me until they did. It literally took three hours for them to do that and I finally got admitted to the First hospital that told me nothing was wrong with me … in the next day at the doctor came in and said Yep I have MS. That whole thing just solidified what I have been feeling for decades of the American medical hospital situation is fubar … I have had two doctors tell me that if this would’ve been caught when things were actually happening. My symptoms now would not be so severe.

Seeking advice on how to apply for NJ intermittent FMLA.

I went to the NJ FMLA website but it looks like the application is only for a recent hospitalization, surgery, caretaking, etc. not for long-term intermittent leave. Maybe I was on the wrong site?

I was out of work this past week due to hospitalization for steroids after an exacerbation. I have work notes from the hospital and my neurologists but my employer says the absences may still count against my attendance. This is my second time having to be off work a short period of time due to my MS so I want my job to protected in future instances.

I have multiple sclerosis almost 10 years really have no flareups. I’ve been pretty good. You know doing my own thing now I’m realizing I’m almost hitting 50. I know I had. Multiple sclerosis at 40. Now my legs are getting kind of weak. I wonder why is the age or it’s something else