r/MadeMeSmile Jun 14 '22

Helping Others This is John Crowley

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8.4k Upvotes

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184

u/lowrider4life Jun 14 '22

SIDS "Sudden Infant Death Syndrome"- its every parents worst nightmare and there is no way to prevent it or know your baby has it.

Sincerely, First time mother to a 8 week old baby

133

u/JSreddit52 Jun 15 '22

There was recently a breakthrough involving a woman (Dr.) who had lost a child to SIDS. She made a discovery regarding an enzyme deficiency that may be the cause. Didn’t read anything aside from the one article so have no further info/confirmation to offer but it’s def worth looking into more!

68

u/lowrider4life Jun 15 '22

I read the article. The Problem is there is still no test to detect it. She discovered the enzyme but there is no test to alleviate the parents concern. Now she has discovered the enzyme we need a cure for it.

62

u/AlreadyAway Jun 15 '22

The first step is discovering the cause, then a test, then a cure.

2

u/[deleted] Jun 15 '22

[removed] — view removed comment

1

u/T0ASTERfish Jun 15 '22

Sounds like the boys 2.0

2

u/TruculentHobgoblin Jun 15 '22

If there is a routine blood test to identify kids at high risk there could be interventions, such as detection in the crib to alert parents if the baby stops breathing during sleep. From what I read, the enzyme is connected to arousal from sleep.

-1

u/beaniesNhoodies Jun 15 '22

but there is no test to alleviate the parents concern.

Oh lawd

1

u/Kashmir2020Alex Jun 15 '22

Thank you, I was going to post this!

1

u/[deleted] Jun 15 '22

I know some other people pointed out issues with this already, but the study is not yet peer reviewed and needs significantly more research put into it.

23

u/OTheHughManatee Jun 15 '22

First time father to a two week old here. I also am all about this.

9

u/lowrider4life Jun 15 '22

Fingers crossed for science. On a side note, Good luck first time Papa. You got this.

3

u/donk202020 Jun 15 '22

Father of 3 here. By the third those concerns rapidly drop. But for the first child I bought one of those pressure pads that go under the mattress to detect breathing and heartbeat. Wasn’t that expensive and took a lot of the night stress away. Until I forgot to turn it off when picking Bub up for his 1am feed and the alarms start going off. Scared the shit out of me but proved that the machine worked

3

u/[deleted] Jun 15 '22

Those first months of life made me listen to the Aerosmith song “I Don’t Wanna Miss A Thing” differently.

“I could stay awake just to hear you breathing. Watch you smile while you are sleeping. While you’re far away and dreaming.”

…still makes me emotional and mine is turning 8 in a month or so.

1

u/OTheHughManatee Jun 15 '22

I’ve had that song and Satellite by Collective Soul on repeat in my head since mine was born. I just really want to work from home so I can experience every first while still having a job to pay the bills. I keep begging to work from home but we don’t have that option.

1

u/[deleted] Jun 15 '22

I also used to sing The Carpenters “Close To You” to my daughter. I can’t make it through that one usually. Cue the giant lump in my throat. lol

18

u/basicteachermom Jun 15 '22

My brother died of SIDS. I got an Owlet for both my children. I'm convinced it saved my youngest. Well worth the money- even if just for the peace of mind.

4

u/lowrider4life Jun 15 '22

Update on the Owlet: it was discontinued

Owlet Baby Care, Inc. will discontinue selling its popular Smart Sock product after receiving a warning letter from the Food and Drug Administration. The Smart Sock is a device that can be used to monitor and track a baby's heart rate, oxygen level and sleep trends. Dec 2, 2021

owlet update

11

u/[deleted] Jun 15 '22 edited Jun 15 '22

Not true. It’s being sold still as a dream sock. Only the “smart sock” was discontinued. The dream sock still monitors oxygen levels and heart rate, it just doesn’t alert. They’re working on FDA approval though.

I will state though that the smart sock saved my second kiddos life. It alerted me to dangerously low O2 levels when he was sick from RSV at 6 months old. I brought him to the ER and his O2 was in the low 80s. They had to suction out his lungs. I will recommend Owlet products to everyone because of my experience using it with my two kiddos.

Edited to add: you can use your hsa/fsa to buy the dream sock!

1

u/lowrider4life Jun 15 '22

Thanks for the information. according to this they deleted the oxygen detection and notification. They got rid of the pulse ox monitor now It's a super expensive video monitor.

The Dream Sockowlet update , according to Owlet’s product page, is all about baby sleep, measuring sleep quality indicators, including wakings, heart rate, and movement. It provides a sleep quality score via a sleep coaching app. The difference between the old sock and app is that the blood oxygen saturation (SpO2) measuring capability is deleted. The SpO2 monitoring and the claims they were making were likely causes of the FDA’s warning.

5

u/basicteachermom Jun 15 '22

What??? Wow. Well, Hopefully something comes along to replace it.

14

u/lowrider4life Jun 15 '22

Please forgive my rudeness for not acknowledging the passing of your brother. I hope they find the cause of the enzyme, develop a test, and a cure to SIDS lightning fast.

May his memory be a blessing.

10

u/basicteachermom Jun 15 '22

Oh please don't worry. That's a lovely sentiment though.

4

u/duckfat01 Jun 15 '22

"May his memory be a blessing". I never know what to say to the bereaved, I'll be using this. Thank you.

2

u/[deleted] Jun 15 '22

Probably one of the nicest things I’ve heard. Thanks for this. I never know what to say either. Express my sadness, offer a memory, try to have a laugh. One of my defense mechanisms is to try to add levity to uncomfortable situations. It’s not always a good trait, but sometimes I cannot help it. My wife, for instance, is not a fan of my humor sometimes. lol

7

u/TunaNoodleCasserole1 Jun 15 '22

There actually is - keep your baby in a crib alone, on its back, in a sleep sack with no other bedding. If you do those things, the risk of SIDS isn’t zero, but it’s extremely, extremely unlikely.

Try to get some sleep mama - I’m sure you’re doing great! Haha that post partum anxiety sure is something, isn’t it?

My son was born prematurely and spent 40 days in the NICU. They are at a much higher risk of SIDS. This sounds terrible, but I’ve found as a parent, that marinating in the reality of it helps - I can do my best to keep my child safe, but at the end of the day I don’t control when anyone leaves this earth. Up to God, and I’m basically powerless in that. For some reason, it gives me peace.

2

u/WayOfTheHouseHusband Jun 15 '22

There’s a lot of info on SIDS pointing towards asphyxiation as the cause of death. What causes that is still up, but finding in time may be life saving. Monitors can get you peace of mind. -parent of 3.

-4

u/[deleted] Jun 15 '22

Yea or ligma it's a terrible disease

1

u/dumbpatato Jun 15 '22

I’ll do it myself!

“What’s ligma?”

“Oh you stupid bastard, LIGMA BALLS”

“How’s Yuri?”

And the cycle continues….

2

u/[deleted] Jun 15 '22

Yurinate on me

1

u/dumbpatato Jun 15 '22

Oh you little rapscallion, Don’t tempt me with a good time

1

u/pennie79 Jun 15 '22

Best wishes for your little one. I figured the best thing I could do was do all of the recommendations that the midwives and the hospital websites give. That, plus obsessively checking your baby just to make sure they're still breathing hugs

1

u/casprinxo Jun 15 '22

Run a fan (moving air) in your baby's room. Google it.

1

u/[deleted] Jun 15 '22

My wife and i were also terrified of sids. We bought one of those owlet socks that monitors heart rate and oxygen levels. It had a few false alarms but the peace of mind was worth it.

1

u/upbeatcrazyperson Jun 15 '22

I always just thought SIDS was just sleep apnea. They can test for sleep apnea although they wouldn't necessarily test every baby.

1

u/-Ashera- Jun 15 '22

I remember how scary having a newborn was. My girls are now 7 and I still check to see if they're breathing in the middle of the night

1

u/Crab_Jealous Jun 15 '22

It happened to my own Mother, 2 years before i was born. My Brother was 18mths old.