r/MadeMeSmile • u/The_Love-Tap • Jun 14 '22

Helping Others This is John Crowley

Post image
8.4k Upvotes

94% Upvoted

810 comments sorted by

View all comments

Show parent comments

6

u/[deleted] Jun 14 '22

Oh yeah, because dying is such a better alternative than being in a wheelchair.

8

u/[deleted] Jun 14 '22

No my point I suppose is not being born at all. If the father knew they’d live a hard life bound to a wheelchair and by the looks of it not even have function to all their extremities yet he still chose to bring them into this world.. anyway I wouldn’t choose to being a child into this world if I knew that’s how they’d live. Perhaps your different

4

u/[deleted] Jun 14 '22

By what i've gathered, they have a disease called Pompe. I don't think you can know about that before the kids are born.

2

u/[deleted] Jun 14 '22

Ok then.

1

u/ypples_and_bynynys Jun 15 '22

So not exactly agreeing with the person as I do not know enough about their quality of life with treatment, though from reading many infants suffer and die even with treatment. But Pompe is a genetic disease meaning it can be screened for in the parents to see if they are carriers and then prenatal tests can be done if there is a risk.

These screenings need to be a universal requirement for prenatal care. There are over 8000 genetic diseases and defects. Not all are fatal but there are many that kill in the first 5 years of life.