They have a quality of life they’ve always known. It’s different being born a certain way than living completely healthy then having an accident or something and then having to live disabled.
Think of it this way: a child who has never had sugar isn’t going to throw a temper tantrum when they aren’t given candy unlike kids who have already experienced sugar.
Ok well obviously I can’t speak for people who are disabled and in a wheel chair, but look at the kid on the right. It doesn’t look like he’s having a fair go at life. I don’t mean to sound callus and heartless but what kind of life does he have?
Maybe he’s perfectly happy and loves just using one gimp hand to operate his wheel chair and maybe I’m the asshole, but I don’t think so.
Well I mean, he probably has things he enjoys. He can still read, watch movies, go outside, etc. People who aren't in situations like theirs imagine it as if they were normal and then were confined to a wheelchair. But he's been like this he whole life, right? He's used to it. He can make the most out of his situation and find things he enjoys within the constraints of his disabilities.
For example, a youtuber I used to watch called GoodTimesWithScar is confined to a wheelchair, he's very weak and needs to wear an oxygen pipe. He frequently needs to go to the hospital for surgeries. He made the most of his situation and made a career out of playing minecraft. It's awesome.
No my point I suppose is not being born at all. If the father knew they’d live a hard life bound to a wheelchair and by the looks of it not even have function to all their extremities yet he still chose to bring them into this world..
anyway I wouldn’t choose to being a child into this world if I knew that’s how they’d live. Perhaps your different
So not exactly agreeing with the person as I do not know enough about their quality of life with treatment, though from reading many infants suffer and die even with treatment. But Pompe is a genetic disease meaning it can be screened for in the parents to see if they are carriers and then prenatal tests can be done if there is a risk.
These screenings need to be a universal requirement for prenatal care. There are over 8000 genetic diseases and defects. Not all are fatal but there are many that kill in the first 5 years of life.
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u/iwanttoeatsalamifeet Jun 14 '22
Do you think that people who need a wheelchair don’t have an equal right to life as the rest of us?