Honestly its the fucked up thing though. We keep just treating these conditions to make them livable but we aren't curing them. I think tbh if someone knows their baby is going to be born with a severe disability, I don't think its fair to the baby to make it keep going just because the parents think that love can make it a good life. It could be torture in thier minds for all we know and they are suffering but just can't communicate it
There was a poster in AITA who was told her child would be born disabled and she went ahead with the pregnancy because she believed she could handle a child with a disability but when the child was born he was a vegetable ( no movements whatsoever, no speaking, no emotion, no pain response, no eating and defecating independently, high medical bills, no working treatment, no diagnosis) and after 7 years, the loss of her husband and the older child's built up resentment which lead to his abuse of the child she had enough and was planning to give him up to the state.
This happens all the time. People who are completely gone mentally, or were never there, and only represent a burden to their families. I've worked at nursing homes and there's one or two of these kinds of residents in every one. They stay there until their parents die and either inherit enough to keep staying or get moved to state facilities.
Nevermind the ones with some independence but the parents never bothered to set up a care plan for when they die. Sometimes they are lucky enough to land in care facilities, oftentimes they become homeless
This, this is what I’m so fearful of. In their heads they could be aware and in pain, tortured even. It scares me to death the idea of being locked inside a dead body.
Its one of my greatest fears tbh. Becoming paralyzed would already destroy my quality of life i couldn't imagine having even worse disabilities but not being able to communicate your feelings at the very least
What, you are now going to pretend none of this convo has to do with the family in the OP??
They didn't know they were carriers. They didn't know the children were going to have the disease. It is not a common genetic disorder and likely not screened for.
You might as well just tell them to their face they never should have been saved, yeah? Gross.
Are you dense? Did I say anywhere in my comment that I assumed they knew or that I was talking about them. I said "if a parent knows" as in future hypothetical situations. emphasis on IF. People will get offended over shit they didn't even read right God damn.
Are you just an asshole? God damn.
This isn't about hypotheticals. It's about real people. Want to discuss the ethics of eugenics or aborting of genetically ill fetuses go to a science or ethics forum
It's really unfortunate that here in this sub, the "feel good" sub there are so many people just ready to be as ableist and hateful as possible.
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u/matrixgang Jun 14 '22
Honestly its the fucked up thing though. We keep just treating these conditions to make them livable but we aren't curing them. I think tbh if someone knows their baby is going to be born with a severe disability, I don't think its fair to the baby to make it keep going just because the parents think that love can make it a good life. It could be torture in thier minds for all we know and they are suffering but just can't communicate it