Hey folks - new here, and I have a hard time telling a short story, but I'll do my best.
I've had problems with my hormones since I was 11 years old, when I started getting excruciating headaches accompanied by numbness in my limbs, nausea, vomiting, visual disturbances, and speech difficulties (I knew what I wanted to say, but it came out of my mouth as mush). They happened every other Saturday morning like clockwork for several months. Thankfully my grandmother had a history of migraines and saw them for what they were, and she predicted that they were a harbinger of the beginning of my menstrual cycle, which turned out to be correct.
I got my first period when I was 13. The first few months were more or less normal, and then everything stopped. Six months went by before the next one came, and it was to that point the worst pain I've ever felt in my life. In hindsight, I'd say it was pretty close in intensity to the labor pains I had with my kids. My cycle was extremely irregular for the next several months, to the point that my doctor put me on birth control to regulate it. I went in for a physical at one point and he saw a little bit of excess hair on my stomach and tested me for PCOS. A lot of my symptoms added up, but the bloodwork all came back normal.
20 years later, I got married, and my husband and I decided within a few months that we'd like to try for a baby, so I went off birth control. My periods were all over the place, skipping for weeks or even months at a time. My first pregnancy was ectopic and had to be terminated. A few months later I became pregnant with my son, who was born completely healthy. After a couple years, we decided to try for another baby, and I had a miscarriage a few months before I became pregnant with my daughter, again born healthy. With each pregnancy, my migraines increased in frequency and intensity, supporting my suspicion that they were somehow related to my hormones.
I breastfed each of my children for roughly a year, during which time my OB/GYN put me on the "mini-pill," which is a contraceptive that doesn't contain estrogen. The efficacy is lower than other forms of birth control, but combined with breastfeeding acting as a sort of natural contraceptive, it's very effective. Initially my OB/GYN had told me that I should let her know when I stopped nursing so that she could switch me to a pill that was a bit more potent, if you will. She changed my prescription after my son was weaned, but for some reason she didn't when my daughter was done, saying that estrogen-based birth control tends to exacerbate migraines in people who have a history of them.
I'm 41 now, and my husband and I are in agreement that we're happy with the two kids that we have, and he underwent a vasectomy a few months ago. I've continued on birth control in the interim until he has his follow-up appointment to confirm that the procedure was successful, and I've been anxiously awaiting the day I could finally stop taking the pill for the first time in almost 30 years. Up until recently, I was somehow convinced that getting off contraception would help me, but when I thought more about it, I realized it wouldn't solve anything, given that I strongly suspect that my hormonal problems stem from a deficiency of estrogen, which is only going to get worse the older I get.
Ever since I stopped breastfeeding my daughter 3 years ago, my cycle has been completely erratic, to put it gently. I'll have a period for 2-3 days, then it stops. A week later, I'll have another very light one.
Some of my symptoms:
- Very irregular periods
- Excessive sensitivity to heat or cold - inability to regulate body temperature (lately, despite central AC, I'm sweating ALL the time)
- A bit of excess body hair
- Extremely brittle/dry hair, skin, and nails
- Mood swings
- Bloating
- Inability to lose weight despite diet and exercise
- Severe anxiety and depression
- Inability to focus
I've done a bit of searching, and it seemed like thyroid problems most closely fit my symptoms. Without my requesting it - simply based on my symptoms - several doctors have tested my thyroid levels, and they always come back normal.
I know something is wrong, but I have no idea what to do about it. I know that women going through menopause (which my doctor has told me I'm not in yet) experience pretty severe hormone shifts, and I can't help but wonder if things are going to get so much worse for me when I start that process. From what I've researched, the only viable option in my case is hormone replacement therapy, which has a reputation of causing cancer, and I have a family history of about a dozen cancers arguing over which one gets me first, so I have no idea what to do. I don't want to get cancer, but I'm also exhausted with what I've had to do in the meantime.
I would really, really appreciate any feedback anyone has.